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Phase 4 N=69 Treatment

Long-Term Growth and Skeletal Effects of Early Growth Hormone Treatment in Turner Syndrome

Turner Syndrome

Enrolled (actual)
69
Serious AEs
15.9%
Results posted
Aug 2016
Primary outcome: Primary: Most Mature Height Standard Deviation Score (SDS) — -1.37; -1.60 standard deviation score

Study Design & Population

Study type
Interventional
Phase
Phase 4
Interventions
Humatrope (Drug)
Age
Pediatric, Adult · 4+ yrs
Sex
Female
Sponsor
Eli Lilly and Company
Primary completion
Sep 2015

Outcome Measures

OutcomeResultp-value
PRIMARY
Most Mature Height Standard Deviation Score (SDS)
-1.37; -1.60
SECONDARY
Height SDS at Various Ages
-0.66; -1.28; -1.29; -1.87; -1.66; -1.69
SECONDARY
Age at Attainment of Tanner 2 Breast Development
11.80; 12.14
SECONDARY
Chronological Age at First Visit Participant Attained Bone Age of 14.5 Years
14.64; 15.26
SECONDARY
Reports of Serious Adverse Events
8; 5
SECONDARY
Percentage of Participants With Occurrence of Pre-specified Clinically Relevant Events
13.9; 18.2; 0; 3.0; 13.9; 6.1
SECONDARY
Percentage of Participants With Abnormal Tympanometry Results
44.4; 54.5; 47.2; 45.5; 27.8; 15.2
SECONDARY
Percentage of Participants With Prevalence of Abnormal Audiometry Results
52.8; 48.5; 44.4; 29.2; 85.7; 66.7
SECONDARY
Percentage of Participants With Abnormal Audiometry Results Based on Pure Tone Average (PTA)
30.6; 31.3; 2.8; 0.0; 22.2; 37.5

Summary

This is an extension study that will gather long-term data on the effect of early growth hormone (GH) treatment on adult height and other aspects of health and development in girls with Turner syndrome. The main purpose is to determine whether girls who received 2 years of GH treatment before 6 years of age achieve taller adult height than girls who were untreated during this time. The study will also look at middle ear and hearing function, and cognitive and behavioral development. Protocol completion is defined as attainment of height velocity less than or equal to 1.0 cm/year, or bone age greater than or equal to 15 years.

Eligibility Criteria

Inclusion Criteria

  • Previously randomized in study B9R-US-GDFG (NCT00406926)
  • Karyotype-proven Turner syndrome

Exclusion Criteria

  • Immediate family members of study site personnel directly affiliated with the study
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT00266656). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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