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Phase 2 N=30 Treatment

Faslodex in McCune-Albright Syndrome

Puberty, Precocious · McCune-Albright Syndrome

Enrolled (actual)
30
Serious AEs
30.0%
Results posted
Jul 2011
Primary outcome: Primary: Change in Frequency of Annualized Days of Vaginal Bleeding on Treatment Compared to Baseline — -3.6 Days per year

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
Fulvestrant (Drug)
Age
Pediatric · 1+ yrs
Sex
Female
Sponsor
AstraZeneca
Primary completion
Dec 2009

Outcome Measures

OutcomeResultp-value
PRIMARY
Change in Frequency of Annualized Days of Vaginal Bleeding on Treatment Compared to Baseline
-3.6
PRIMARY
Percentage of Participants With Baseline Vaginal Bleeding Who Experienced ≥ 50% Reduction in the Number of Vaginal Bleeding Days on Treatment Compared to Baseline
73.9
PRIMARY
Percentage of Participants With Baseline Vaginal Bleeding Who Experienced Cessation of Vaginal Bleeding Over a 6-month Treatment Period
78.3
PRIMARY
Percentage of Participants With Baseline Vaginal Bleeding Who Experienced Cessation of Vaginal Bleeding Over the Whole 12-month Treatment Period
34.8
PRIMARY
Change in Rate of Bone Age (BA) Advancement Over First 6-month Treatment Period Compared to Baseline
-0.83
PRIMARY
Change in Rate of BA Advancement Over Second 6-month Treatment Period Compared to Baseline
-1.10
PRIMARY
Change in Rate of BA Advancement Over the Whole 12-month Treatment Period Compared to Baseline
-0.93
PRIMARY
Change in Growth Velocity (Annualized Growth Velocity in cm/Year) Over First 6-month Treatment Period Compared to Baseline
-1.7
PRIMARY
Change in Growth Velocity (Annualized Growth Velocity in cm/Year) Over Second 6-month Treatment Period Compared to Baseline
-0.8
PRIMARY
Change in Growth Velocity (Annualized Growth Velocity in cm/Year) Over Whole 12-month Treatment Period Compared to Baseline
-1.4
PRIMARY
Change in Growth Velocity (Z-score) Over the First 6-month Treatment Period Compared to Baseline
-1.60
PRIMARY
Change in Growth Velocity (Z-score) Over the Second 6-month Treatment Period Compared to Baseline
-0.64
PRIMARY
Change in Growth Velocity (Z-score) Over the Whole 12-month Treatment Period Compared to Baseline
-1.14
PRIMARY
Change in Uterine Volume From Baseline to Month 6 as Assessed by Ultrasound
-1.10
PRIMARY
Change in Uterine Volume From Month 6 to Month 12/Final Visit as Assessed by Ultrasound
-0.13
PRIMARY
Change in Uterine Volume From Baseline to Month 12/Final Visit as Assessed by Ultrasound
-2.44
PRIMARY
Change in Mean Ovarian Volume From Baseline to Month 6 as Assessed by Ultrasound
0.10
PRIMARY
Change Mean in Ovarian Volume From Month 6 to Month 12/Final Visit as Assessed by Ultrasound
0.76
PRIMARY
Change in Mean Ovarian Volume From Baseline to Month 12/Final Visit as Assessed by Ultrasound
1.01
PRIMARY
Mean Clearance of Fulvestrant
38.4
PRIMARY
Mean Volume of Distribution (V1/F) of Fulvestrant
33000
PRIMARY
Mean Volume of Distribution (V2/F) of Fulvestrant
32700
PRIMARY
Number of Participants With Treatment Emergent Adverse Events (TEAEs) and Treatment Emergent Serious Adverse Events (TESAEs)
27; 9
PRIMARY
Number of Participants With Abnormal Clinical Laboratory Parameters Reported as TEAEs
1; 1
PRIMARY
Number of Participants With Compliance to Study Treatment
30
PRIMARY
Number of Participants With Withdrawals From Study Treatment Due to TEAE
PRIMARY
Hormone Assay: Serum Oestradiol Level
25.95
PRIMARY
Hormone Assay: Serum Luteinizing Hormone (LH) Level
0.11
PRIMARY
Hormone Assay: Serum Follicle-stimulating Hormone (FSH) Level
1.13
PRIMARY
Hormone Assay: Serum Testosterone Level
0.65
SECONDARY
Change in Tanner Stage of Breast From Baseline to Month 12/Final Visit
0.0
SECONDARY
Change in Tanner Stage of Pubic Hair From Baseline to Month 12/Final Visit
0.0
SECONDARY
Change in Predicted Adult Height (PAH) From Baseline to Month 12/Final Visit
0.5
SECONDARY
Percentage of Participants With McCune-Albright Syndrome (MAS) Associated G Protein α-subunit (Gsα) Mutation
23.3

Summary

The purpose of this study is to evaluate the safety, effectiveness and pharmacokinetics of a study drug called Faslodex (fulvestrant) in the treatment of progressive precocious puberty (PPP) (early puberty) in girls with McCune-Albright syndrome (MAS)

Eligibility Criteria

Inclusion Criteria

  • Females less than or equal to 10 years of age (prior to 11th birthday)
  • Diagnosis of MAS
  • PPP associated with MAS

Exclusion Criteria

  • Received any prior treatment for PPP associated with MAS with fulvestrant
  • Abnormal platelet count or liver function tests
  • Bleeding disorders
  • Long term anticoagulation therapy
  • Known hypersensitivity to any component of the study drug
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT00278915). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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