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Phase 3 N=35 Randomized Quadruple-blind Treatment

Efficacy, Safety, and Tolerability of ACZ885 in Patients With Muckle-Wells Syndrome

Muckle Wells Syndrome

Enrolled (actual)
35
Serious AEs
3.0%
Results posted
Feb 2011
Primary outcome: Primary: Percent of Participants With Disease Flare in Part II (After 24 Weeks of the Double-blind Part) — 0; 81.3 percent of participants

Study Design & Population

Study type
Interventional
Phase
Phase 3
Interventions
ACZ885 (Drug); Placebo (Drug)
Age
Pediatric, Adult, Older Adult · 4+ yrs
Sex
All
Sponsor
Novartis
Primary completion
Oct 2008

Outcome Measures

OutcomeResultp-value
PRIMARY
Percent of Participants With Disease Flare in Part II (After 24 Weeks of the Double-blind Part)
0; 81.3
PRIMARY
Number of Participants Who Experienced a Disease Flare in Part II
0; 13
SECONDARY
Number of Participants With Treatment Response in Part I (After 8 Weeks)
31; 2; 1; 1
SECONDARY
Investigator's Clinical Assessment of Autoinflammatory Disease Activity & Participant's Assessment of Symptoms at End of Part II (After 24 Weeks of the Double-blind Part)
8; 0; 7; 4; 0; 8
SECONDARY
Change in Inflammation Markers at the End of Part II (C-reactive Protein and/or Serum Amyloid A) (After 24 Weeks of the Double-blind Part) From Week 8.
1.10; 19.93; 2.27; 71.09
SECONDARY
Pharmacokinetics (CLD (L/d))
0.177
SECONDARY
Pharmacodynamics Measured by Interleukin-1β (IL-1β) Concentrations at End of Part I.
19.047
SECONDARY
Pharmacodynamics Measured by Interleukin-1β (IL-1β) Concentrations at End of Part II.
21.943; 0.596
SECONDARY
Pharmacodynamics Measured by Interleukin-1β (IL-1β) Concentrations at End of Part III.
23.018

Summary

This study is designed to provide efficacy and safety data for ACZ885 (a fully human anti-interleukin-1beta (anti-IL-1beta) monoclonal antibody) administered as an injection subcutaneously (s.c.) in patients with Muckle-Wells Syndrome. Part I is an 8-week open-label, active treatment period to identify ACZ885 responders. Part II is a double-blind, placebo-controlled period to assess primarily the efficacy of ACZ885 compared to placebo. Part III is an open-label, active treatment period where patients will receive ACZ885 every 8 weeks after withdrawal or completion of Part II.

Eligibility Criteria

Inclusion Criteria

  • Molecular diagnosis of NALP3 mutations and clinical picture resembling Muckle-Wells Syndrome.
  • Muckle-Wells Syndrome patients who participated in the CACZ885A2102 study, will have the option to participate in this study upon disease flare
  • Muckle-Wells Syndrome patients requiring medical intervention either untreated or treated (i.e. under ACZ885, anakinra, or any other investigational IL-1 blocking therapy).

Exclusion Criteria

  • History of being immunocompromised, including a positive HIV at screening test result.
  • No live vaccinations within 3 months prior to the start of the trial, during the trial, and up to 3 months following the last dose.
  • History of significant medical conditions, which in the Investigator's opinion would exclude the patient from participating in this trial.
  • History of recurrent and/or evidence of active bacterial, fungal, or viral infections.
  • Positive tuberculin skin test at 48 to 72 hours after administration at the screening visit or within 2 months prior to the screening visit, according to national guidelines.

Other protocol-defined inclusion/exclusion criteria may apply

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT00465985). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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