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Phase 2 N=9 Treatment

Medical Treatment of "High-Risk" Neurofibromas

Neurofibromatosis 1

Enrolled (actual)
9
Serious AEs
11.1%
Results posted
Aug 2023
Primary outcome: Primary: Improvement of Symptoms and Pain — 9 Participants

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
Peg-Interferon alpha-2b (Drug); Celecoxib (Celebrex) (Drug); Temozolomide (temodar) (Drug); Vincristine Sulfate (Oncovin) (Drug)
Age
Pediatric, Adult · 2+ yrs
Sex
All
Sponsor
Corewell Health West
Primary completion
Apr 2017

Outcome Measures

OutcomeResultp-value
PRIMARY
Improvement of Symptoms and Pain
9
PRIMARY
At Least 50% Shrinkage in Tumor Measurements by Physical Examination
7
PRIMARY
Response by MRI Measurements
0; 1; 8; 2; 1; 6
SECONDARY
No Reported Psychological Toxicity Based Upon Psychological Evaluations
8

Summary

Patients with neurofibromatosis type 1 (NF1) commonly develop non-cancerous tumors called plexiform neurofibromas. These tumors can be defined as "high-risk" when they result in severe pain, physical disability, organ dysfunction and/or become life-threatening. Presently, there is no effective medical therapy to offer patients with "high-risk" plexiform neurofibromas, and surgery does not provide lasting help. This study will evaluate the effectiveness of two treatment combinations in patients with "high-risk" plexiform neurofibromas.

Eligibility Criteria

Inclusion Criteria

  • "High-Risk" Plexiform Neurofibromas associated with a diagnosis of NF1
  • 2-30 years old (minimum bodyweight of 10 kilograms)
  • Adequate renal function

Exclusion Criteria

  • Previously untreated active optic glioma
  • History of any previous allergy to study medications
  • History of ischemic vascular disease
  • Pregnancy / Breast feeding
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT00846430). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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