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Phase 2 N=25 Treatment

A Study of the Safety and Immunogenicity of Repeated rhC1INH Administration

Genetic Disorders · Hereditary Angioedema

Enrolled (actual)
25
Serious AEs
8.0%
Results posted
Jan 2013
Primary outcome: Primary: HAE Attacks/Week — 0.9; 0.4 attacks/week

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
Recombinant Human C1 Inhibitor (Drug)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Pharming Technologies B.V.
Primary completion
Mar 2010

Outcome Measures

OutcomeResultp-value
PRIMARY
HAE Attacks/Week
0.9; 0.4
SECONDARY
The Evaluation of Pharmacokinetic/ Pharmacodynamic ("PK/PD")Parameters.
1.06; 1.02; 1.00

Summary

Hereditary angioedema ("HAE") is a disease characterized by recurrent tissue swelling affecting various body locations. Recent literature shows that patients with frequent attacks may benefit from long-term prophylaxis. This study aims to evaluate the safety and prophylactic effect of weekly administrations of 50 IU/kg recombinant C1 Inhibitor ("rhC1INH").

Eligibility Criteria

Inclusion Criteria

  • Aged at least 18 years
  • Signed informed consent
  • Comfirmed diagnosis of HAE with baseline plasma level of functional C1INH activity of less than 50% of normal, and/or proven HAE ,mutation in C1INH gene.

Exclusion Criteria

  • A history of anaphylaxis or severe allergy (i.e. requiring medication) to food, proteins and/or drugs.
  • A history of allergic reactions to C1INH products or rabbit protein.
  • Any reported SAE related to study drug administration (withdrawal criterium)
  • Elevated IgE against rabbit dander (>0.35 kU/L; ImmunoCap assay; Phadia)
  • A diagnosis of acquired C1INH deficiency.
  • Woman of child bearing potential, pregnancy or breast-feeding
  • previous treatment within the last 3 months with plasma-derived C1INH
  • Any clinically significant abnormality in the routine haematology, biochemistry and urinalysis
  • Any condition or treatment that in the opinion of the investigator might interfere with the evaluation of the study objectives.
  • Any changes since screening that would exclude subject based on above exclusion criteria.
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT00851409). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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