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Phase 3 Completed N=53 Treatment

Open Label, Continuation Study of Cholic Acid in Subjects With Inborn Errors of Bile Acid Synthesis

Bile Acid Synthesis Defect
Source: ClinicalTrials.gov NCT01438411 ↗
Enrolled (actual)
53
Serious AEs
35.9%
Results posted
Aug 2020
Primary outcomePrimary: Change in Atypical Urinary Bile Acid Excretion by FAB-MS (Fast-Atom-Bombardment Ionization-Mass Spectrometry) — 25; 6; 10; 10 Participants
◆ Published Evidence
Established
26citations · ~4 / year
Open-label Phase 3 Continuation Study of Cholic Acid in Patients With Inborn Errors of Bile Acid Synthesis.
Journal of pediatric gastroenterology and nutrition · 2020 · Open access · Likely link

Summary

The primary purpose of the study is to evaluate the therapeutic efficacy and safety of cholic acid in subjects with identified inborn errors of bile acid synthesis.

Linked Publications

  • Open-label Phase 3 Continuation Study of Cholic Acid in Patients With Inborn Errors of Bile Acid Synthesis.
    Journal of pediatric gastroenterology and nutrition · 2020 · 26 citations · Open access · Likely link

Outcome Measures

OutcomeResultp-value
PRIMARY
Change in Atypical Urinary Bile Acid Excretion by FAB-MS (Fast-Atom-Bombardment Ionization-Mass Spectrometry)
25; 6; 10; 10; 25; 11
SECONDARY
Evaluation of Serum Transaminases: ALT
27; 9; 7; 5; 20; 15
SECONDARY
Evaluation of Serum Transaminases: AST
17; 17; 5; 8; 15; 17
SECONDARY
Clinical Laboratory Results: Bilirubin
3.678; 3.785
SECONDARY
Clinical Laboratory Results: Gamma Glutamyl Transferase (GGT)
38.8; 16.4
SECONDARY
Clinical Laboratory Results: Alkaline Phosphatase
293.7; 39.6
SECONDARY
Clinical Laboratory Results: Prothrombin Time
17.977; 1.045
SECONDARY
Physical Examinations: Height
26.767; 25.540
SECONDARY
Physical Examinations: Body Weight
38.030; 33.227
SECONDARY
Incidence of Adverse Events
44

Eligibility Criteria

Inclusion Criteria

Subjects who received cholic acid through CCHMC protocols 91-10-10 or CAC-002-01 and meet the following criteria are eligible for study participation.

  • The subject and/or parent/legal guardian must have provided informed consent prior to study start.
  • The subject must have a diagnosis of an inborn error of bile acid synthesis.
  • The subject must be willing and able to comply with all study assessments and procedures.
  • Subjects with other organ dysfunction will not be excluded
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01438411) and the linked publication. Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.

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