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Phase 2 N=2 Treatment

Inhaled Granulocyte-Macrophage Colony Stimulating Factor (GM-CSF) in Hereditary Pulmonary Alveolar Proteinosis (PAP)

Hereditary Pulmonary Alveolar Proteinosis

Enrolled (actual)
2
Serious AEs
0.0%
Results posted
Sep 2020
Primary outcome: Primary: Change in Time (Minutes) to Discontinuation of Exercise During a Standardized Treadmill Exercise Test — 17; 33 Percent Change

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
Leukine (Drug)
Age
Pediatric, Adult, Older Adult · 8+ yrs
Sex
All
Sponsor
Children's Hospital Medical Center, Cincinnati
Primary completion
Jul 2013

Outcome Measures

OutcomeResultp-value
PRIMARY
Change in Time (Minutes) to Discontinuation of Exercise During a Standardized Treadmill Exercise Test
17; 33
PRIMARY
Change in Minimum Pulse Oximetry During a Standardized Treadmill Exercise Test
0; -2.1
SECONDARY
Change in Diffusion Capacity for Carbon Monoxide
11; 4
SECONDARY
Change in Minimum Pulse Oximetry During a Standardized Exercise Protocol Oximetry
0; 50
SECONDARY
Change in Radiographic Evidence of PAP Lung Disease
-510; -579; -366; -441; -593; -675
SECONDARY
Change in Quality of Life
10.7; 75; -5.2; 19.6; 3.1; 11.7
SECONDARY
Change in Dyspnea Symptom Score
71; 11
SECONDARY
Change in Serum Anti-GM-CSF Antibodies Levels
0.67; 0.36; 0.32; 1.85; 19.7; 71.8
SECONDARY
Change in Serum Biomarkers - GM-CSF
43.75; 39.4; 43.2; 88.5; 11.5; 7.8
SECONDARY
Change in Serum Biomarkers - Surfactant Protein D
796.2; 619; 696.4; 589; 697.2; 536.9

Summary

The purpose of this study is to evaluate the therapeutic efficacy of inhaled recombinant human GM-CSF in individuals with hereditary Pulmonary Alveolar Proteinosis (PAP) due to partial dysfunction of the GM-CSF receptor.

Eligibility Criteria

Inclusion Criteria

  • A diagnosis of PAP caused by bi-allelic mutations in CSF2RA or CSF2RB associated with impaired GM-CSF-R-alpha or GM-CSF-R-beta function, respectively, resulting in reduced but non-zero GM-CSF signaling
  • Able and willing to give written informed consent / assent as necessary
  • Clinically stable

Exclusion Criteria

  • Confirmed diagnosis of a disorder of surfactant production caused by bi-allelic mutations in ABCA3, SFTPB, or SFTPC
  • Confirmed diagnosis of autoimmune PAP caused by a high level of GM-CSF autoantibody
  • Confirmed diagnosis of secondary PAP caused by an underlying clinical disorder known to be associated with the development of PAP, e.g., inhalation of silica or titanium; myelodysplasia and others
  • Treatment with any investigational agent in the 3 months prior to enrollment
  • History of severe allergic or anaphylactic reactions to GM-CSF or other yeast-derived products
  • History of asthma or other reactive airways disease
  • Known active, viral, fungal, mycobacterial, or other infection
  • A serious medical condition which, in the opinion of the investigator or data and safety monitoring committee, would make the patient unsuitable for the study
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01511068). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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