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N/A N=156

Hereditary Haemorrhagic Telangiectasia Flight Safety Study

Hereditary Haemorrhagic Telangiectasia

Enrolled (actual)
156
Serious AEs
0.0%
Results posted
Nov 2024
Primary outcome: Primary: HHT Patients Who by the Questionnaire Did or Did Not Self Report a Medical Complication During Flight — 77 percentage of patients

Study Design & Population

Study type
Observational
Phase
N/A
Interventions
Aeroplane flight in the past- no active intervention for study (Other); Questionnaire (Other)
Age
Pediatric, Adult, Older Adult · 16+ yrs
Sex
All
Sponsor
Imperial College London
Primary completion
Oct 2011

Outcome Measures

OutcomeResultp-value
PRIMARY
HHT Patients Who by the Questionnaire Did or Did Not Self Report a Medical Complication During Flight
77

Summary

Hereditary Haemorrhagic Telangiectasia (HHT) is a condition in which sufferers have abnormal blood vessels which makes them more likely to bleed than other people, particularly in the lungs, which results in low blood oxygen levels. Flying may make this worse and cause problems. The investigators want to know if there are an increased number of problems on flights compared to on land. The investigators currently do not have any evidence based guidelines on air travel to best advice people who suffer with HHT. The investigators would therefore like to ask individuals who have HHT about their experience on a flight, using a postal questionnaire.

Eligibility Criteria

Inclusion Criteria

HHT

Exclusion Criteria

Unable to provide informed consent

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01590121). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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