N/A
Completed N=50
Diet and Hereditary Haemorrhagic Telangiectasia
Hereditary Haemorrhagic Telangiectasia (HHT)
Source: ClinicalTrials.gov NCT01692015 ↗
Enrolled (actual)
50
Serious AEs
0.0%
Results posted
Mar 2024
Primary outcomePrimary: Number of Participants That Achieving Personal Recommended Intake of Iron — 43 Participants
Summary
Hereditary Haemorrhagic Telangiectasia (HHT) affects 1 in 5,000 people. The purpose of this study is to provide data regarding the diet and nosebleed frequency using a questionnaire.
This will be filled in by people with HHT.
The questionnaire has been designed in paper format.
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Number of Participants That Achieving Personal Recommended Intake of Iron |
43 | — |
| PRIMARY Nosebleed Severity |
4.4 | — |
| PRIMARY Number of Participants That Achieving the Hemorrhage Adjusted Iron Requirement (HAIR) |
10 | — |
Eligibility Criteria
Inclusion Criteria
- A diagnosis of hereditary Haemorrhagic Telangiectasia (HHT)
Exclusion Criteria
- Unable to provide informed consent
- Presence of another major organ disorder that may affect nutritional status, such as inflammatory bowel disease, or celiac disease.
Data sourced from ClinicalTrials.gov (NCT01692015). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.