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N/A N=198 Randomized Health Services Research

Easy-to-Read Informed Consent (ETRIC) for Hematopoietic Cell Transplantation Clinical Trials (BMT CTN 1205)

Improve the Informed Consent Process

Enrolled (actual)
198
Serious AEs
Results posted
Jun 2018
Primary outcome: Primary: Quality of Informed Consent Part A (QuIC-A) Score — 81.8; 80.5 units on a scale — p=0.37

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Consent Form Specific Format 1 (Other); Consent Form Specific Format 2 (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Medical College of Wisconsin
Primary completion
Aug 2016

Outcome Measures

OutcomeResultp-value
PRIMARY
Quality of Informed Consent Part A (QuIC-A) Score
81.8; 80.5 0.37
SECONDARY
Quality of Informed Consent Part B (QuIC-B) Score
98.2; 96.4 0.39
SECONDARY
Modified Deaconess Informed Consent Comprehension Test (DICCT)
15; 15 0.17
SECONDARY
REALM-R Score
15; 17; 62; 69; 21; 14
SECONDARY
Newest Vital Sign (NVS) Score
11; 16; 53; 52; 13; 18
SECONDARY
State Trait Anxiety Inventory (STAI) Score
2.5; 2.5; 2.4; 2.3 0.21
SECONDARY
Participant Satisfaction With Consent Process
4.2; 4.1 0.80
SECONDARY
Participant Information Location Time
22; 30; 15; 20; 20; 20 0.73
SECONDARY
Consent Rate on Parent Trial
2; 3; 13; 10; 22; 25 1.00

Summary

The study has two parts: (1) Randomized Study to evaluate the effectiveness of ETRIC, and (2) Evaluation Study to understand barriers to implementation of ETRIC.

Eligibility Criteria

Inclusion and exclusion criteria for the ETRIC randomized study will be the same as the eligibility criteria for the BMT CTN parent studies. Please refer to BMTCTN0901 (NCT01339910) Reduced Intensity Regimen vs Myeloablative Regimen for Myeloid Leukemia or Myelodysplastic Syndrome, BMTCTN1101 (NCT01597778) Double Cord Versus Haploidentical, BMTCTN1203 (NCT02208037) Novel Approaches for Graft-versus-Host Disease Prevention Compared to Contemporary Controls, and BMTCTN1301 (NCT02345850) Calcineurin Inhibitor-Free Interventions for Prevention of Graft-versus-Host Disease for detailed eligibility criteria.

Notes: Enrollment on the BMT CTN 0901 trial (NCT01339910) was closed to further accrual on April 18, 2014. Enrollment on the BMT CTN 1203 trial (NCT02208037) completed accrual on May 13, 2016.

Additional inclusion criteria specific for the ETRIC study will include:

  • Adult patients (≥ 18 years)
  • Speaking and reading proficiency in English (as most of this study's instruments have not been translated and validated in languages other than English)
  • Willing and able to provide informed consent
  • Stated willingness to comply with study procedures and reporting requirements

Exclusion Criteria: N/A

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT02081248). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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