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N/A N=1,151 Supportive Care

Implementation of Knowledge-Based Palliative Care

Ageing

Enrolled (actual)
1,151
Serious AEs
3.5%
Results posted
Sep 2020
Primary outcome: Primary: World Health Organization Quality of Life-BREF (WHOQOL-BREF) — 86; 82; 3; 3 score on a scale

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Educational Intervention (Behavioral)
Age
Pediatric, Adult, Older Adult
Sex
All
Sponsor
Lund University
Primary completion
Jun 2017

Outcome Measures

OutcomeResultp-value
PRIMARY
World Health Organization Quality of Life-BREF (WHOQOL-BREF)
86; 82; 3; 3; 3; 3
PRIMARY
World Health Organization Quality of Life-OLD (WHOQOL-OLD)
15; 13; 11; 12; 14; 14
PRIMARY
Person-centred Care Assessment Tool (P-CAT)(Patient Version)
25.0; 27; 11.0; 11.0
PRIMARY
Person-Centred Climate Questionnaire (PCQ Patient Version)
51.5; 53.0; 19.5; 19.5; 15.0; 15.5
PRIMARY
Next-of-Kin Participation in Care (NoK-PiC); Psychometric Evaluation
48.9; 48.6; 27.6; 27.9; 21.4; 20.7
PRIMARY
World Health Organization Quality of Life-BREF (WHOQOL-BREF) for Next of Kin
94; 103; 4; 4; 4; 4
SECONDARY
Person-centred Care Assessment Tool (P-CAT) (Staff Version)
45.0; 44.0; 34.0; 34.0; 11.0; 11.0
SECONDARY
Person-Centred Climate Questionnaire (PCQ-S)
77.0; 74.0; 27.0; 27.0; 25.0; 25.0

Summary

The research on ageing during the last couple of decades has increasingly focused on questions regarding the quality of life and life satisfaction of the old people. Yet the research indicates that when it comes to the final stage of life, the end includes unnecessary suffering and the quality of life drops. Palliative care has traditionally been provided successfully to younger persons dying from incurable illnesses while older people dying of multiple morbidities or "old age" has received far less of this type of care. However, sixty percent of all people who died in Sweden in 2010 were at least 80 years old and it is well known that dying among older people often is a prolonged period of suffering. One reason might be that it is more difficult to identify when the final stages of life begins for older persons. The purpose of this project is to implement and evaluate how a knowledge-based model for palliative care in nursing homes affects the quality of life and the participation in the care process for older persons in nursing homes and their next of kin. A second aim is to explore the staff's implementation process of palliative care and the role of the leadership. The final aim is to investigate which factors (barriers and facilitators) that affect the implementation process of this model.

Eligibility Criteria

Inclusion Criteria

  • Older persons living in the participating nursing homes
  • Next of kin to older persons living in the participating nursing homes
  • Staff working at the participating nursing homes
  • Managers working at the participating nursing homes
  • The participating nursing homes must be located in either Kronoberg County or Skåne County in Sweden

Exclusion Criteria

  • Not being cognitive able to participate in interviews or answering the questionnaires
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT02708498). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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