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N/A N=13 Supportive Care

Gaming Technology to Engage Adolescent Sickle Cell Patients in Pain Management

Sickle Cell Disease

Enrolled (actual)
13
Serious AEs
0.0%
Results posted
Feb 2019
Primary outcome: Primary: System Usability Questionnaire — 86.67 units on a scale

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Pinpoint App (Other)
Age
Pediatric, Adult, Older Adult · 13+ yrs
Sex
All
Sponsor
Klein Buendel, Inc.
Primary completion
Sep 2017

Outcome Measures

OutcomeResultp-value
PRIMARY
System Usability Questionnaire
86.67

Summary

Sickle cell disease (SCD) is a common genetic disorder characterized by episodes of pain, yet assessments to identify type, intensity, frequency, and phase of pain among SCD adolescents is lacking. Research shows that interactive gaming technology can enhance adolescents' learning, and can be especially effective in delivering health-related messages and tools to improve their self-care. Pinpoint is an interactive gaming tablet app that will be developed with the significant input of clinical experts to assist SCD teens with better identification and self-report of their pain.

Eligibility Criteria

Phone Interview, Focus Group, and Usability Inclusion Criteria:

  • Be 13-17 years of age
  • Be diagnosed with Sickle Cell Disease
  • Able to read and speak English
  • Able to assent to participate

Phone Interview, Focus Group, and Usability Exclusion Criteria:

  • Not 13-17 years of age
  • Not diagnosed with Sickle Cell Disease
  • Unable to read and speak English
  • Unable to assent to participate

Healthcare Provider Interview Inclusion Criteria:

  • Be a healthcare provider to teens with sickle cell disease
  • Be 18 years of age or older
  • Able to read and speak English
  • Able to consent to participate

Healthcare Provider Interview Exclusion Criteria:

  • Not a healthcare provider to teens with sickle cell disease
  • Not 18 years of age or older
  • Unable to read and speak English
  • Unable to consent to participate
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT03291613). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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