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Phase 1 N=120 Randomized Health Services Research

Optimizing Decision Making About Breast Reconstruction After Mastectomy: A Patient-Centered Approach

Breast Cancer

Enrolled (actual)
120
Serious AEs
0.0%
Results posted
Sep 2019
Primary outcome: Primary: Percent Correct on the Knowledge Measure (Objective Knowledge Score) — 84.6; 59.7 percentage of answers correct

Study Design & Population

Study type
Interventional
Phase
Phase 1
Interventions
Usual care American Society of Plastic Surgeons booklet "Breast Reconstruction" (Other); Decision tool (Other); Usual Care Group - Outcome Measures (Other); Decision Group - Outcome Measures (Other); Demographic and Background Questions (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
Female
Sponsor
Washington University School of Medicine
Primary completion
Oct 2018

Outcome Measures

OutcomeResultp-value
PRIMARY
Percent Correct on the Knowledge Measure (Objective Knowledge Score)
84.6; 59.7
PRIMARY
Decisional Conflict (SURE Measure)
2.9; 2.5
PRIMARY
Decision Process (Decision Quality Index Subscale)
65.1; 58.2
SECONDARY
Quality of Life as Measured by the BREAST-Q Questionnaire
58.5; 57.3; 64.6; 71.2; 79.5; 82.7
SECONDARY
Gold Standard Shared Decision Making as Measured by the Top collaboRATE Score
33; 37
SECONDARY
Patient Activation (PAM) as Measured by the Number of Participants Who Agreed With Each Statement
55; 59; 57; 58; 56; 50
SECONDARY
Receipt of Reconstruction
48; 47; 11; 8; 1; 3
SECONDARY
Type of Reconstruction
23; 27; 10; 8; 15; 12
SECONDARY
Timing of Reconstruction
45; 47; 3; 0
SECONDARY
Time Spent on Tool
26.7
SECONDARY
Consult Time
29.9; 30
SECONDARY
Usability as Measured by the Computer System Usability Questionnaire (CSUQ)
6.3

Summary

Although clinical decision tools (CDTs) exist for a variety of treatments, CDTs designed to support personalized breast reconstruction decisions, particularly about type and timing of reconstruction, are lacking. The objective of this proposal is to develop and pilot test a clinical decision tool that provides personalized risk information and reflects patients' preferences and clinical needs.

Eligibility Criteria

  • Newly diagnosed or recurrent breast cancer
  • Considering a referral or already referred to a plastic surgeon by their surgical oncologist for possible reconstruction
  • Considering or completing a mastectomy.
  • Does not have known distant metastatic disease (stage IV disease) at the time of recruitment
  • Female.
  • English-speaking.
  • At least 18 years of age.
  • Able to understand and willing to sign an IRB-approved written informed consent document.
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT03346161). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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