N/A
Completed N=19
Engaging Siblings of Adults With Autism in Future Planning
Autistic Disorder
Source: ClinicalTrials.gov NCT03374072 ↗
Enrolled (actual)
19
Serious AEs
0.0%
Results posted
Mar 2023
Primary outcomePrimary: Quality of Sibling Plan of Action — 6.00; 5.44; 6.43; 6.56 units on a scale
Summary
The goal of this pilot study was to develop and obtain preliminary feasibility and effectiveness data of a telehealth program (Siblings FORWARD) to help siblings of autistic adults work with their families to plan for the future. The main questions it aimed to answer were:
* Is the Siblings FORWARD program feasible to implement via telehealth in the community setting?
* Do siblings benefit from participation in the Siblings FORWARD program?
The Siblings FORWARD program involves 6-7 individualized telehealth sessions with a trained community facilitator. Researchers compared participation in the Siblings FORWARD program to an information-only control condition.
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Quality of Sibling Plan of Action |
6.00; 5.44; 6.43; 6.56 | — |
| SECONDARY Family Communication About Future Planning |
2.13; 2.00; 2.00; 1.89 | — |
| SECONDARY Future Planning Self-Efficacy |
12.38; 15.22; 14.00; 15.78 | — |
| SECONDARY Sibling Barriers to Future Planning |
3.38; 4.89; 2.88; 4.67 | — |
| SECONDARY Sibling Knowledge of Adult Services |
14.13; 10.33; 14.50; 10.67 | — |
| SECONDARY Sibling Knowledge of Family Future Plan |
1.63; 2.78; 1.75; 2.44 | — |
Eligibility Criteria
Inclusion Criteria
Siblings of adults with autism spectrum disorder (ASD):
- Have one or more adult brother(s) or sister(s) with ASD who are either biologically related and/or were raised in the same family of origin (e.g., adopted, step, or foster siblings)
- Age 18+.
- English or Spanish fluency.
Autistic Adults:
- Have an ASD diagnosis.
- Have an adult sibling
- Age 21+.
- English or Spanish fluency if verbal.
Exclusion Criteria
Siblings of autistic adults:
-Siblings will be excluded if they have an ASD diagnosis themselves or if they have any disability that would interfere with their ability to engage meaningfully in future planning for the autistic adult.
Autistic adults:
-None
Data sourced from ClinicalTrials.gov (NCT03374072). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.