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Phase 2 N=24 Treatment

Study to Evaluate the Efficacy and Safety of REGN3918 in Patients With Paroxysmal Nocturnal Hemoglobinuria (PNH)

Paroxysmal Nocturnal Hemoglobinuria (PNH)

Enrolled (actual)
24
Serious AEs
0.0%
Results posted
Jun 2023
Primary outcome: Primary: Percentage of Participants Who Achieved Adequate Control of Intravascular Hemolysis — 75.0 Percentage of Participants

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
REGN3918 (Drug)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Regeneron Pharmaceuticals
Primary completion
Jun 2021

Outcome Measures

OutcomeResultp-value
PRIMARY
Percentage of Participants Who Achieved Adequate Control of Intravascular Hemolysis
75.0
PRIMARY
Percentage of Participants Who Achieved Transfusion Avoidance
87.5
SECONDARY
Percentage of Participants Who Had Breakthrough Hemolysis (BTH)
SECONDARY
Percentage of Participants Who Achieved Normalization of Intravascular Hemolysis
16.7
SECONDARY
Time to First Lactate Dehydrogenase (LDH) ≤1.5 x ULN
13.625
SECONDARY
Percentage of Days With LDH ≤ 1.5 ULN From Week 4 Through Week 26
93.4
SECONDARY
Change From Baseline in LDH Levels at Week 26
-5.070
SECONDARY
Percent Change From Baseline in LDH Levels at Week 26
-81.72
SECONDARY
Rate of Transfusion With Red Blood Cells (RBCs)
1.039
SECONDARY
Number of Units of Transfusion With RBCs
3.625
SECONDARY
Change From Baseline in RBC Hemoglobin Levels at Week 26
15.0
SECONDARY
Change From Baseline in Free Hemoglobin Levels at Week 26
-9.19
SECONDARY
Change From Baseline in Total Complement Hemolytic Activity Assay (CH50) at Week 26
-236.6
SECONDARY
Percent Change From Baseline in CH50 up to Week 26
-99.99
SECONDARY
Change From Baseline in Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F) at Week 26
9.9
SECONDARY
Change From Baseline in the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-core 30 (EORTC QLQ-C30) at Week 26
12.509; 17.511; 14.457; 15.846; -18.904; -13.537
SECONDARY
Change From Baseline in European Quality of Life-5 Dimensions-3 Level (EQ-5D-3L) Index Score
0.136
SECONDARY
Change From Baseline in EQ-5D-3L Visual Analogue Scale (VAS) at Week 26
8.4
SECONDARY
Number of Participants With Treatment-emergent Adverse Events (TEAEs) and Serious TEAEs
21; 0
SECONDARY
Number of Participants With TEAEs Based on Severity
13; 6; 2
SECONDARY
Number of Participants With Clinically Meaningful Changes in Clinical Laboratory Parameters
13; 17; 0
SECONDARY
Number of Participants With Clinically Meaningful Changes in Vital Signs
12
SECONDARY
Number of Participants With Clinically Meaningful Changes in 12-lead Electrocardiograms (ECGs)
SECONDARY
Serum Concentrations of Total REGN3918
0; 605; 429; 292; 324; 368
SECONDARY
Number of Participants With Treatment-emergent Anti-Drug Antibodies (ADA) Response to REGN3918

Summary

The primary objective of the study is to demonstrate a reduction in intravascular hemolysis by REGN3918 over 26 weeks of treatment in patients with active PNH who are treatment-naive to complement inhibitor therapy or have not recently received complement inhibitor therapy. The secondary objectives of the study are: * To evaluate the safety and tolerability of REGN3918. * To evaluate the effect of REGN3918 on parameters of intravascular hemolysis * To assess the concentrations of total REGN3918 in serum. * To evaluate the incidence of treatment-emergent anti-drug antibodies to REGN3918 over time * To evaluate the effect of REGN3918 on patient-reported outcomes (PROs) measuring fatigue and health-related quality of life

Eligibility Criteria

Key Inclusion Criteria

  • Diagnosis of paroxysmal nocturnal hemoglobinuria (PNH) confirmed by high-sensitivity flow cytometry
  • PNH granulocytes > 10% at screening visit
  • Active disease, as defined by the presence of 1 or more PNH-related signs or symptoms (eg, fatigue, hemoglobinuria, abdominal pain, shortness of breath [dyspnea], anemia [hemoglobin <10 g/dL], history of a MAVE [including thrombosis], dysphagia, or erectile dysfunction) or history of red blood cell (RBC) transfusion due to PNH within 3 months of screening.
  • Lactate dehydrogenase (LDH) level ≥ 2 × upper limit of normal (ULN) at screening visit.

Key Exclusion Criteria

  • Prior treatment with a complement inhibitor either within 6 months prior to screening visit or at any time where the patient was refractory to complement inhibitor therapy, in the opinion of the investigator (with the exception of eculizumab refractory patients due to the C5 variant R885H/C)
  • History of bone marrow transplantation
  • Body weight < 40 kilograms at screening visit
  • Peripheral blood absolute neutrophil count (ANC) <500/μL [<0.5 x 109/L] or peripheral blood platelet count <50,000/μL
  • Documented history of systemic fungal disease or unresolved tuberculosis, or evidence of active or latent tuberculosis infection (LTBI) during screening period
  • Any contraindication for receiving Neisseria meningitidis vaccination and antibiotic prophylaxis therapy as recommended in the study
  • Any active, ongoing infection within 2 weeks of screening or during the screening period
  • Any clinically significant abnormality identified at the time of screening that in the judgment of the Investigator or any sub-Investigator would preclude safe completion of the study or constrain endpoints assessment such as major systemic diseases, or patients with short life expectancy
  • Women who are pregnant, breastfeeding, or who have a positive pregnancy test at screening visit or day 1

NOTE: Other protocol defined Inclusion/Exclusion criteria apply.

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT03946748). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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