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N/A N=20

Development of a Health-Related Symptom Index for Participants With and Either Treated or Monitored for Anal High-Grade Squamous Intraepithelial Lesions

High Grade Anal Canal Squamous Intraepithelial Neoplasia · Human Immunodeficiency Virus

Enrolled (actual)
20
Serious AEs
Results posted
Nov 2023
Primary outcome: Primary: Development of Spanish-language Version of the Anal Cancer/High-grade Squamous Intraepithelial Lesions (HSIL) Outcomes Research (ANCHOR) Health-related Quality of Life (HRQoL) Index-Round 1 and Round 2 — 4; 3; 3; 3 participants

Study Design & Population

Study type
Observational
Phase
N/A
Interventions
Interview (Other); Quality-of-Life Assessment (Other); Questionnaire Administration (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
AIDS Malignancy Consortium
Primary completion
Mar 2020

Outcome Measures

OutcomeResultp-value
PRIMARY
Development of Spanish-language Version of the Anal Cancer/High-grade Squamous Intraepithelial Lesions (HSIL) Outcomes Research (ANCHOR) Health-related Quality of Life (HRQoL) Index-Round 1 and Round 2
4; 3; 3; 3; 3; 3

Summary

This trial develops a health-related symptom index for participants with and either treated or monitored for anal high-grade squamous intraepithelial lesions. The health-related quality of life index may help to capture the symptoms and related experiences of living with or being treated for high-grade squamous intraepithelial lesions.

Eligibility Criteria

Inclusion Criteria

  • Human immunodeficiency virus (HIV)-1 infection.
  • Biopsy-proven anal HSIL within the prior nine months.
  • Participant must have received anal HSIL treatment in the last nine months. If the participant's treatment plan is observation? the participant must have been diagnosed with anal HSIL in the last nine months.
  • Life expectancy of greater than 5 years.
  • Fluent in Spanish with limited English proficiency, per self-report.

Exclusion Criteria

  • History of anal cancer.
  • Inability to understand a written consent form.
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT04276935). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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