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Phase 2 N=24 Randomized Treatment

Pozelimab and Cemdisiran Combination Treatment in Adult Participants With Paroxysmal Nocturnal Hemoglobinuria Who Have Received Pozelimab Monotherapy

Paroxysmal Nocturnal Hemoglobinuria

Enrolled (actual)
24
Serious AEs
10.6%
Results posted
Jan 2025
Primary outcome: Primary: Percentage of Participants With Treatment Emergent Adverse Events (TEAEs) — 66.7; 41.7; 16.7; 0 Percentage of participants

Study Design & Population

Study type
Interventional
Phase
Phase 2
Interventions
Pozelimab (Drug); Cemdisiran (Drug)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Regeneron Pharmaceuticals
Primary completion
Oct 2022

Outcome Measures

OutcomeResultp-value
PRIMARY
Percentage of Participants With Treatment Emergent Adverse Events (TEAEs)
66.7; 41.7; 16.7; 0; 16.7; 0
SECONDARY
Percent Change of Lactate Dehydrogenase (LDH) From Pre-treatment to End-of-treatment Period
2.93; 3.65
SECONDARY
Percentage of Participants Maintaining Adequate Control of Hemolysis From Baseline (Day 1) Through Week 28
75.0; 91.7
SECONDARY
Percentage of Participants Maintaining Adequate Control of Hemolysis From Week 4 Through Week 28
83.3; 91.7
SECONDARY
Percentage of Participants With Adequate Control of Hemolysis at Each Visit Day 1 Through Week 28
100.0; 100.0; 100.0; 100.0; 100.0; 100.0
SECONDARY
Percentage of Participants With Normalization of LDH at Each Visit From Baseline (Day 1) Through Week 28
92.0; 75.0; 92.0; 83.0; 100.0; 92.0
SECONDARY
Average LDH (U/L) Based on Area Under the Curve (AUC) From OLTP Baseline (Day 1) Through Week 28
238.18; 244.42
SECONDARY
Average LDH (U/L) Based on Area Under the Curve (AUC) From OLTP Week 4 Through Week 28
202.49; 211.28
SECONDARY
Percentage of Participants With Breakthrough Hemolysis From Baseline (Day 1) Through Week 28
8.3; 0.0
SECONDARY
Percentage of Participants With Hemoglobin Stabilization From Baseline (Day 1) Through Week 28
75.0; 91.7
SECONDARY
Change in Hemoglobin Levels From Baseline (Day 1) Through Week 28
-1.3; 10.3
SECONDARY
Percentage of Participants With Transfusion Avoidance From Baseline (Day 1) Through Week 28
83.3; 100.0
SECONDARY
Rate of Red Blood Cells (RBCs) Transfused From Baseline (Day 1) to Week 28
1.284; NA
SECONDARY
Number of Per-Protocol RBC Units Transfused From Baseline (Day 1) Through Week 28
1.5; 0.0
SECONDARY
Change in Total Complement Hemolysis Activity Assay (CH50) From Baseline (Day 1) Through Week 28
0.0; -0.1
SECONDARY
Change in Fatigue as Measured by Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-Fatigue) Scale From Baseline (Day 1) Through Week 28
-6.0; -2.0
SECONDARY
Change in Global Health Status/Quality of Life Scale (GHS/QoL) on the European Organization for Research and Treatment of Cancer: Quality-of-Life Questionnaire Core 30 Items (EORTC QLQ-C30) From Baseline (Day 1) Through Week 28
-9.4; -1.9
SECONDARY
Change in Physical Function (PF) Scores on the EORTC QLQ-C30 From Baseline (Day 1) Through Week 28
-6.7; 0.7
SECONDARY
Concentrations of Total Pozelimab in Serum on Week 28
131; 58.2
SECONDARY
Concentrations of Cemdisiran in Plasma on Week 28
NA; NA
SECONDARY
Concentrations of Total C5 on Week 28
0; 0
SECONDARY
Number of Participants With Pozelimab Anti-Drug Antibody (ADA) Responses Over Time
0; 0; 0; 0
SECONDARY
Number of Participants With Cemdisiran Anti-Drug Antibody (ADA) Responses Over Time
0; 0; 0; 1
SECONDARY
Percentage of Participants With TEAEs for Participants Who Received Treatment Intensification
SECONDARY
Change of LDH From Baseline (Day 1e) to Week 24e
-18.2
SECONDARY
Percent Change of LDH From OLEP Baseline (Day 1e) to Week 24e
-0.7
SECONDARY
Change of LDH From Baseline (Day 1e) to Week 52e
-14.5
SECONDARY
Percent Change of LDH From Baseline (Day 1e) to Week 52e
0.2
SECONDARY
Percentage of Participants Maintaining Adequate Control of Hemolysis From Baseline (Day 1e) Through Week 24e
95.7
SECONDARY
Percentage of Participants Maintaining Adequate Control of Hemolysis From Baseline (Day 1e) Through Week 52e
95.7
SECONDARY
Percentage of Participants With Adequate Control of Hemolysis at Each Visit From Baseline (Day 1e) Through Week 52e
96.0; 100.0; 100.0; 100.0; 100.0; 100.0
SECONDARY
Percentage of Participants With Normalization of LDH at Each Visit From Baseline (Day 1e) Through Week 52e
87.0; 83.0; 82.0; 82.0; 86.0; 82.0
SECONDARY
Average LDH (U/L) Based on Area Under the Curve (AUC) From OLEP Baseline (Day 1e) Through Week 52e
154.63
SECONDARY
Percentage of Participants With Breakthrough Hemolysis From Baseline (Day 1e) Through Week 24e
4.3
SECONDARY
Percentage of Participants With Breakthrough Hemolysis From Baseline (Day 1e) Through Week 52e
4.3
SECONDARY
Percentage of Participants With Hemoglobin Stabilization From Baseline (Day 1e) Through Week 24e
78.3
SECONDARY
Percentage of Participants With Hemoglobin Stabilization From Baseline (Day 1e) Through Week 52e
69.6
SECONDARY
Change in Hemoglobin Levels From Baseline (Day 1e) to Week 24e
0.8
SECONDARY
Change in Hemoglobin Levels From Baseline (Day 1e) to Week 52e
-0.6
SECONDARY
Percentage of Participants With Per-Protocol Transfusion Avoidance From Baseline (Day 1e) Through Week 24e
87.0
SECONDARY
Percentage of Participants With Per-Protocol Transfusion Avoidance From Baseline (Day 1e) Through Week 52e
87.0
SECONDARY
Rate of RBCs Transfused From Baseline (Day 1e) to Week 24e
0.591
SECONDARY
Rate of RBCs Transfused From Baseline (Day 1e) to Week 52e
0.506
SECONDARY
Number of Units of RBCs Transfused From Baseline (Day 1e) to Week 24e
0.4
SECONDARY
Number of Units of RBCs Transfused From Baseline (Day 1e) to Week 52e
0.9
SECONDARY
Change in CH50 From Baseline (Day 1e) to Week 16e
0.0
SECONDARY
Change in CH50 From Baseline (Day 1e) to Week 24e
SECONDARY
Change in CH50 From Baseline (Day 1e) to Week 52e
0.0
SECONDARY
Percent Change in CH50 From Baseline (Day 1e) to Week 16e
NA
SECONDARY
Percent Change in CH50 From Baseline (Day 1e) to Week 24e
NA
SECONDARY
Percent Change in CH50 From Baseline (Day 1e) to Week 52e
NA
SECONDARY
Change in Fatigue as Measured by Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-Fatigue) Scale From Baseline (Day 1e) to Week 52e
-0.9
SECONDARY
Change in GHS/QoL on the EORTC QLQ-C30 From Baseline (Day 1e) to Week 52e
6.0
SECONDARY
Change in PF Scores on the EORTC QLQ-C30 From Baseline (Day 1e) to Week 52e
-0.3
SECONDARY
Percentage of Participants With TEAEs Up to Week 52
73.9; 8.7; 4.3
SECONDARY
Concentrations of Total Pozelimab in Serum on Week 52
63.4; 58.6
SECONDARY
Concentrations of Total C5 on Week 52
0; NA
SECONDARY
Concentrations of Cemdisiran in Plasma on Week 52
NA; NA

Summary

The primary objective of the study is to evaluate the safety and tolerability of 2 dosing regimens of pozelimab and cemdisiran combination therapy during the open-label treatment period (OLTP) The secondary objectives of the study are: * To evaluate the effect of the combination treatment on the following parameters of intravascular hemolysis: lactate dehydrogenase (LDH) control, breakthrough hemolysis, and inhibition of total complement hemolysis activity (CH50) * To evaluate the effect of the combination treatment on hemoglobin levels * To evaluate the effect of the combination treatment on red blood cell (RBC) transfusion requirements * To evaluate the effect of the combination treatment on clinical outcome assessments (COAs) measuring fatigue and health related quality of life * To assess the concentrations of total pozelimab in serum and total complement component (C) 5 and cemdisiran in plasma * To assess immunogenicity to pozelimab and cemdisiran * To evaluate the long-term safety and efficacy of pozelimab and cemdisiran in an optional open-label extension period (OLEP) * To assess safety after treatment intensification with pozelimab and cemdisiran

Eligibility Criteria

Key Inclusion Criteria

  • Participants with PNH who are receiving treatment with pozelimab monotherapy in the R3918- PNH-1868 study (NCT04162470)

Key Exclusion Criteria

  • Documented, positive polymerase chain reaction (PCR) or equivalent test based on regional recommendations for COVID-19 or suspected SARS-CoV-2 infection as defined in the protocol
  • Participants with documented history of liver cirrhosis or participants with liver disease with evidence of currently impaired liver function; or participants with alanine aminotransferase (ALT) or aspartate aminotransferase (AST) as described in the protocol
  • Significant protocol deviation(s) in the parent study based on the investigator's judgment as described in the protocol
  • Any new condition or worsening of an existing condition which, in the opinion of the investigator, would make the participant unsuitable for enrollment or would jeopardize the safety of the participant
  • Known hypersensitivity to cemdisiran or any component of cemdisiran formulation

NOTE: Other protocol-defined Inclusion/ Exclusion Criteria apply

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT04811716). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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