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N/A N=2,331 Randomized Single-blind Health Services Research

Connecting Families to Overcome Ovarian Cancer

Ovarian Cancer

Enrolled (actual)
2,331
Serious AEs
0.0%
Results posted
Oct 2024
Primary outcome: Primary: Number of Survivors Using Website Access Code — 147; 202 Participants

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Message-based Outreach Intervention for Survivors (Behavioral); Standard Outreach for Survivors (Behavioral); Message-based Outreach Intervention for Close Relatives (Behavioral); Standard Outreach for Close Relatives (Behavioral)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Emory University
Primary completion
Feb 2023

Outcome Measures

OutcomeResultp-value
PRIMARY
Number of Survivors Using Website Access Code
147; 202
PRIMARY
Number of Survivors Consenting to Participate in the Study
130; 184
PRIMARY
Number of Survivors Creating a Study Login
126; 174
PRIMARY
Number of Relatives of Survivors Using the Website Access Code
20; 1
PRIMARY
Number of Relatives of Survivors Consenting to Participate in the Study
19; 1
PRIMARY
Number of Relatives of Survivors Creating a Login
19; 0
SECONDARY
Relative Contact Option Selected by Survivors
78; 34; 24
SECONDARY
Number of Survivors Requesting Telegenetic Counseling
26; 17
SECONDARY
Number of Survivors Completing Telegenetic Counseling
15; 9
SECONDARY
Number of Relatives Requesting Telegenetic Counseling
9; 0
SECONDARY
Number of Relatives Completing Telegenetic Counseling
8; 0
SECONDARY
Time Visiting Website by Survivors
14.81
SECONDARY
Time Visiting Website by Relatives
6.78
SECONDARY
Number of Return Visits to Website by Survivors
1.56
SECONDARY
Number of Return Visits to Website by Relatives
1.31
SECONDARY
Number of Pages Viewed by Survivors
10.25
SECONDARY
Number of Pages Viewed by Relatives
13.37

Summary

This study tests a multi-component, low cost, message-based communication outreach intervention to engage ovarian cancer survivors and their at-risk relatives in considering cancer genetic services. The intervention includes foot-in-the-door techniques, tailored/targeted print, website support, and short messages to expand reach of prevention messages.

Eligibility Criteria

Inclusion Criteria for Survivors:

  • in the Georgia Cancer Registry (GSR)
  • diagnosed with ovarian, fallopian tube, or peritoneal cancers
  • lived in Georgia at the time of diagnosis
  • not deceased per the registry's records
  • have a mailing address in GSR records

Inclusion Criteria for Close Relatives:

  • 25 years or older
  • able to access the internet
  • a 1st or 2nd degree relative of the survivor
  • able to read English
  • non-incarcerated or institutionalized

Exclusion Criteria

  • none
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT04927013). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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