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N/A N=38 Supportive Care

Adapting Connect-Home Transitional Care for the Unique Needs of Persons With Alzheimer's Disease and Other Dementias and Their Caregivers

Pathologic Processes

Enrolled (actual)
38
Serious AEs
5.3%
Results posted
Jul 2023
Primary outcome: Primary: Number of Patients for Whom the Intervention Components Were Feasible — 16; 19; 15; 16 Participants

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Connect-Home Plus (Behavioral)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
University of North Carolina, Chapel Hill
Primary completion
Feb 2022

Outcome Measures

OutcomeResultp-value
PRIMARY
Number of Patients for Whom the Intervention Components Were Feasible
16; 19; 15; 16; 19; 17
PRIMARY
Mean Patient Intervention Satisfaction Scores
1.0; 1.0; 1.0
PRIMARY
Mean Caregiver Intervention Satisfaction Scores
1.3; 1.0; 1.3
SECONDARY
Care Transitions Measure-15 (Patient)
70.3
SECONDARY
Preparedness for Caregiving Scale (Caregiver)
24.8
SECONDARY
Life Space Assessment
20.1
SECONDARY
Dementia Quality of Life Measure (Patient)
90.8
SECONDARY
Dementia Quality of Life-Proxy Measure (Caregiver)
91.1
SECONDARY
Mean Self-Reported Days of ED or Hospital Use 30 Days After Skilled Nursing Facility Discharge (Patient)
0.58
SECONDARY
Zarit Caregiver Burden Scale (Caregiver)
16.6
SECONDARY
Distress Thermometer (Caregiver)
4.1

Summary

This primary purpose of this study will be to (1) examine the feasibility and acceptability of transitional care focusing on care needs of skilled nursing facility (SNF) patients with dementia and their caregivers (primary aim). The secondary purpose will be to describe the effect of the intervention on SNF patient outcomes (preparedness for discharge, quality of life, function and acute care use) and caregiver outcomes (preparedness for the caregiving role, caregiver burden and caregiver distress).

Eligibility Criteria

Patient Inclusion Criteria:

  • be able to speak English
  • have a goal of discharge to home
  • have a diagnosis of ADRD, or a Brief Inventory of Mental Status (BIMS) score <13, or (for persons unable to complete the BIMS assessment), have a Cognitive performance score of ≥3 (calculated using data in the Minimum Data Set 3.0 and an algorithm for estimating cognitive impairment using Minimum Data Set 3.0 data other than BIMS)
  • have a caregiver willing to participate.
  • for patients with documentation in the medical record of a caregiver who is the patient's legally authorized representative, consent of the caregiver to participate in the study as the patient's representative.

Patient Exclusion Criteria:

  • unable to speak English

Caregiver Inclusion Criteria

  • self-reports assisting the patient at home
  • the ability to speak English.

Caregiver Exclusion Criteria

  • unable to speak English
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT05887388). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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