N/A N=20 Treatment

Developing and Testing Culturally Based Educational Videos for Puerto Rican and African American Home Hospice Caregivers

Caregivers of Patients on Hospice Care

Bottom Line

View on ClinicalTrials.gov: NCT06024278 ↗

Enrolled (actual)

Serious AEs

0.0%

Results posted

Dec 2024

Primary outcome: Primary: Caregivers' Comfort in Managing Shortness of Breath as Assessed by a Likert Scale at Pre-Intervention — 3.0 score on a scale

Study Design & Population

Study type: Interventional
Phase: N/A
Interventions: Caregiver educational videos for African American caregivers (Behavioral); Caregiver educational videos for Puerto Rican caregivers (Behavioral)
Age: Adult, Older Adult · 18+ yrs
Sex: All
Sponsor: Weill Medical College of Cornell University
Primary completion: Feb 2024

Outcome Measures

Outcome	Result	p-value
PRIMARY Caregivers' Comfort in Managing Shortness of Breath as Assessed by a Likert Scale at Pre-Intervention	3.0	—
PRIMARY Caregivers' Comfort in Managing Shortness of Breath as Assessed by a Likert Scale at Post-Intervention	4.1	—
PRIMARY Caregivers' Knowledge in Delivering Liquid Medication as Assessed by a Likert Scale at Pre-Intervention	3.9	—
PRIMARY Caregivers' Knowledge in Delivering Liquid Medication as Assessed by a Likert Scale at Post-Intervention	4.6	—
PRIMARY Caregivers' Knowledge in Caregiver Resources in Hospice as Assessed by a Likert Scale at Pre-Intervention	3.2	—
PRIMARY Caregivers' Knowledge in Caregiver Resources in Hospice as Assessed by a Likert Scale at Post-Intervention	4.5	—
PRIMARY Caregivers' Comfort in Using Opioids to Treat Pain as Assessed by a Likert Scale at Pre-Intervention	3.2	—
PRIMARY Caregivers' Comfort in Using Opioids to Treat Pain as Assessed by a Likert Scale at Post-Intervention	4.0	—
PRIMARY Caregivers' Knowledge in Turning a Patient in Bed as Assessed by a Likert Scale at Pre-Intervention	4.1	—
PRIMARY Caregivers' Knowledge in Turning a Patient in Bed as Assessed by a Likert Scale at Post-Intervention	4.6	—
PRIMARY Caregivers' Knowledge in Recognizing Patients' Agitation and Confusion as Assessed by a Likert Scale at Pre-Intervention	4.1	—
PRIMARY Caregivers' Knowledge in Recognizing Patients' Agitation and Confusion as Assessed by a Likert Scale at Post-Intervention	4.6	—
PRIMARY Caregivers' Knowledge in Recognizing End-of-life Signs and Symptoms as Assessed by a Likert Scale at Pre-Intervention	2.9; 3.1	—
PRIMARY Caregivers' Knowledge in Recognizing End-of-life Signs and Symptoms as Assessed by a Likert Scale at Post-Intervention	4.4; 3.2	—
PRIMARY Caregivers' Comfort in Managing Shortness of Breath Related to Anxiety as Assessed by a Likert Scale at Pre-Intervention	3.0	—
PRIMARY Caregivers' Comfort in Managing Shortness of Breath Related to Anxiety as Assessed by a Likert Scale at Post-Intervention	3.5	—
PRIMARY Caregivers' Knowledge About Spiritual Resources in Hospice Care as Assessed by a Likert Scale at Pre-Intervention	4.4	—
PRIMARY Caregivers' Knowledge About Spiritual Resources in Hospice Care as Assessed by a Likert Scale at Post-Intervention	4.4	—
PRIMARY Caregivers' Comfort in Using Opioids Like Morphine to Help Ease Shortness of Breath as Assessed by a Likert Scale at Pre-Intervention	3.1	—
PRIMARY Caregivers' Comfort in Using Opioids Like Morphine to Help Ease Shortness of Breath as Assessed by a Likert Scale at Post-Intervention	3.0	—
PRIMARY Caregivers' Comfort in Managing Nausea as Assessed by a Likert Scale at Pre-Intervention	3.5	—
PRIMARY Caregivers' Comfort in Managing Nausea as Assessed by a Likert Scale at Post-Intervention	3.7	—
PRIMARY Caregivers' Comfort in Managing Constipation as Assessed by a Likert Scale at Pre-Intervention	4.1	—
PRIMARY Caregivers' Comfort in Managing Constipation as Assessed by a Likert Scale at Post-Intervention	4.2	—
PRIMARY Caregivers' Knowledge About Recognizing Caregiver Stress as Assessed by a Likert Scale at Pre-Intervention	3.9	—
PRIMARY Caregivers' Knowledge About Recognizing Caregiver Stress as Assessed by a Likert Scale at Post-Intervention	4.0	—
PRIMARY Caregivers' Comfort in Coping With Lack of Appetite for Someone at the End of Life as Assessed by a Likert Scale at Pre-Intervention	1.7	—
PRIMARY Caregivers' Comfort in Coping With Lack of Appetite for Someone at the End of Life as Assessed by a Likert Scale at Post-Intervention	2.7	—
PRIMARY Caregivers' Knowledge in Making Financial Preparations at the End of Life as Assessed by a Likert Scale at Pre-Intervention	3.3	—
PRIMARY Caregivers' Knowledge in Making Financial Preparations at the End of Life as Assessed by a Likert Scale at Post-Intervention	4.0	—
PRIMARY Caregivers' Comfort in Managing Agitation and Confusion as Assessed by a Likert Scale at Pre-Intervention	2.9	—
PRIMARY Caregivers' Comfort in Managing Agitation and Confusion as Assessed by a Likert Scale at Post-Intervention	3.2	—
SECONDARY Caregiver Preparedness Scale Score at Pre-Intervention	23.5; 24.1	—
SECONDARY Caregiver Preparedness Scale Score at Post-Intervention	28.3; 26.6	—
SECONDARY Caregiving Competence Scale Score at Pre-Intervention	13.8	—
SECONDARY Caregiving Competence Scale Score at Post-Intervention	14.3	—
SECONDARY Chronic Pain Self-Efficacy Scale at Pre-Intervention	—	—
SECONDARY Chronic Pain Self-Efficacy Scale at Post-Intervention	—	—
SECONDARY Number of Participants Who Provided Qualitative Feedback That Each Video Culturally Tailored for African American Hospice Caregivers Was Helpful at Post-Intervention	9; 0; 9; 0; 9; 0	—
SECONDARY Number of Participants Who Provided Qualitative Feedback That Each Video Culturally Tailored for Puerto Rican Hospice Caregivers Was Helpful at Post-Intervention	0; 8; 0; 8; 0; 8	—

Summary

The investigators hypothesize that culturally based educational videos for Puerto Rican and African American home hospice caregivers will better inform caregivers in managing symptoms, preparedness, self-efficacy, and competence.

Eligibility Criteria

Inclusion Criteria

Family caregivers who identify themselves as Puerto Rican or African American
English and/or Spanish speaking
18 year of age or older
Currently receiving home hospice services with a patient

View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT06024278). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.