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N/A N=8 Treatment

Single Daily Dosage of Trientine for Maintenance Treatment for Wilson Disease

Wilson Disease

Enrolled (actual)
8
Serious AEs
0.0%
Results posted
May 2014
Primary outcome: Primary: ALT — 41.38 U/L

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Once a day Trientine (Drug)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Yale University
Primary completion
Jul 2011

Outcome Measures

OutcomeResultp-value
PRIMARY
ALT
50.89
PRIMARY
ALT
50.89
PRIMARY
Cu Serum
0.52
PRIMARY
Cu Serum
0.52
SECONDARY
INR
1.05
SECONDARY
INR
1.05
SECONDARY
Albumin
0.52
SECONDARY
Albumin
0.52
SECONDARY
Cu Urine
313.4
SECONDARY
Cu Urine
313.4
SECONDARY
Zn Urine
2214
SECONDARY
Zn Urine
2214

Summary

Hypothesis: The investigators postulate that patients with Wilson disease who are asymptomatic or who have been effectively treated for their symptoms and are in a maintenance phase therapy can be safely and effectively treated with a single daily dosage of the chelating agent trientine. Specific Aims: To demonstrate that a single daily treatment with trientine is as effective or better than a patient's current maintenance therapy. This will be accomplished by performance of a case control prospective study of patients on their prior therapy, and during a period of treatment with a single weight based dose regimen of trientine. The primary endpoint for this study is the demonstration of equivalence to a patient's prior therapy. Secondary endpoints include: 1) demonstration of stability or improvement in parameters of copper metabolism; 2) improvement in adherence to therapy; 3) no progression of liver disease (defined by changes in synthetic function, albumin and INR, and fibrosis by Fibrotest).

Eligibility Criteria

Inclusion Criteria

Established diagnosis of Wilson Disease:

  • That have been treated for at least 1 year
  • Compensated liver disease and/or stable neurological or psychiatric disease.
  • Normal or minimal elevation of serum ALT ( 2 times upper limit of normal A female who is pregnant or intends to become pregnant
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01472874). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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