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Phase 3 Completed N=175 Randomized Quadruple-blind Treatment

Efficacy Assessment of Systematic Treatment With Folinic Acid and Thyroid Hormone on Psychomotor Development of Down Syndrome Young Children

Source: ClinicalTrials.gov NCT01576705 ↗
Enrolled (actual)
175
Serious AEs
17.2%
Results posted
May 2020
Primary outcomePrimary: GMDS (Griffiths Mental Development Scale) — 51.96; 51.27; 51.66; 51.67 developpement quotient
◆ Published Evidence
Emerging
14citations · ~2 / year
Thyroid hormone and folinic acid in young children with Down syndrome: the phase 3 ACTHYF trial.
Genetics in medicine : official journal of the American College of Medical Genetics · 2020 · Open access · Likely link

Summary

Evaluation of the following in very young children with Down syndrome: * the efficacy of systematic treatment with L-thyroxine at controlled doses (clinically and by ultrasensitive thyreostimulating hormone (TSH) assay), * the efficacy of systematic folinic acid treatment at a dose of 1 mg/kg/o.i.d, * any interaction between these two treatments.

Linked Publications (2)

  • Thyroid hormone and folinic acid in young children with Down syndrome: the phase 3 ACTHYF trial.
    Genetics in medicine : official journal of the American College of Medical Genetics · 2020 · 14 citations · Open access · Likely link
  • Psychomotor development in infants and young children with Down syndrome-A prospective, repeated measure, post-hoc analysis.
    American journal of medical genetics. Part A · 2022 · 4 citations · Likely link

Outcome Measures

OutcomeResultp-value
PRIMARY
GMDS (Griffiths Mental Development Scale)
51.96; 51.27; 51.66; 51.67
SECONDARY
BL (Brunet Lezine Revised Scale)
51.18; 50.64; 51.24; 51.36

Eligibility Criteria

Inclusion Criteria

  • patient with a karyotype demonstrating homogeneous, free or Robertsonian translocation trisomy 21
  • patient having undergone a cardiac ultrasound not demonstrating any severe heart disease
  • patient aged 6 to 18 months at inclusion

Exclusion Criteria

  • congenital hypothyroidism
  • hypothyroidism demonstrated by laboratory tests (TSH > 7mUI/l)
  • presenting or having presented hyperthyroidism
  • presenting or having presented leukaemia
  • presenting or having presented West syndrome or any other form of epilepsy or unstable neurological disease
  • presenting or having presented signs of central nervous system distress: stroke, postoperative hypoxia, meningitis)
  • presenting severe heart disease on cardiac ultrasound, with haemodynamic effects
  • presenting non-controlled cardiac arrhythmia
  • Apgar < 7 to 5 min at birth
  • Gestational age < 231 days (33 gestation weeks)
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01576705) and the linked publication. Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.

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