N/A
N=211
Partnering With Autistic Adults to Improve Healthcare
Autism Spectrum Disorder
Bottom Line
View on ClinicalTrials.gov: NCT01579669 ↗Enrolled (actual)
211
Serious AEs
0.0%
Results posted
Dec 2015
Primary outcome: Primary: Patient Satisfaction — 95.08; 95.96; 96.8; 92.11 percentage of participants
Study Design & Population
- Study type
- Interventional
- Phase
- N/A
- Interventions
- Use of toolkit (Behavioral)
- Age
- Adult, Older Adult · 18+ yrs
- Sex
- All
- Sponsor
- Oregon Health and Science University
- Primary completion
- Aug 2014
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Patient Satisfaction |
95.08; 95.96; 96.8; 92.11; 94.87 | — |
| SECONDARY Provider Satisfaction |
82.05; 86.49 | — |
| SECONDARY Patient Use of Toolkit Components |
96.00; 57.74 | — |
| SECONDARY Change in Patient Satisfaction With Healthcare |
30.91; 32.63 | 0.0269 sig |
| SECONDARY Change in Patient's Perceived Barriers to Healthcare |
4.07; 2.82 | <0.0001 sig |
| SECONDARY Change in Patient Healthcare Self-Efficacy |
37.92; 39.37 | 0.016 sig |
Summary
The goal of this proposal is to develop and evaluate patient-centered care tools for autistic adults and their primary care providers (PCPs).
Eligibility Criteria
Inclusion Criteria
- Medical diagnosis of autism spectrum disorder (including autistic disorder, Asperger's disorder, Childhood Disintegrative Disorder, and pervasive developmental disorder NOS)
- Understands written or spoken English or has a support person available who understands written or spoken English
- Has a primary care provider
Exclusion Criteria
- Is not a resident of the United States
Data sourced from ClinicalTrials.gov (NCT01579669). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.