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N/A Completed N=211 Health Services Research

Partnering With Autistic Adults to Improve Healthcare

Source: ClinicalTrials.gov NCT01579669 ↗
Enrolled (actual)
211
Serious AEs
0.0%
Results posted
Dec 2015
Primary outcomePrimary: Patient Satisfaction — 95.08; 95.96; 96.8; 92.11 percentage of participants

Summary

The goal of this proposal is to develop and evaluate patient-centered care tools for autistic adults and their primary care providers (PCPs).

Outcome Measures

OutcomeResultp-value
PRIMARY
Patient Satisfaction
95.08; 95.96; 96.8; 92.11; 94.87
SECONDARY
Provider Satisfaction
82.05; 86.49
SECONDARY
Patient Use of Toolkit Components
96.00; 57.74
SECONDARY
Change in Patient Satisfaction With Healthcare
30.91; 32.63 0.0269 sig
SECONDARY
Change in Patient's Perceived Barriers to Healthcare
4.07; 2.82 <0.0001 sig
SECONDARY
Change in Patient Healthcare Self-Efficacy
37.92; 39.37 0.016 sig

Eligibility Criteria

Inclusion Criteria

  • Medical diagnosis of autism spectrum disorder (including autistic disorder, Asperger's disorder, Childhood Disintegrative Disorder, and pervasive developmental disorder NOS)
  • Understands written or spoken English or has a support person available who understands written or spoken English
  • Has a primary care provider

Exclusion Criteria

  • Is not a resident of the United States
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01579669). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.

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