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N/A N=136

Aspiring to Awesome- Patient Preference Privacy Selections in EMR

Sexually Transmitted Diseases

Enrolled (actual)
136
Serious AEs
0.0%
Results posted
Mar 2015
Primary outcome: Primary: Number of Patients Recording Preferences to Restrict Provider Access to Some or All Electronic Health Record (EHR) Data — 45; 13 participants

Study Design & Population

Study type
Observational
Phase
N/A
Interventions
Patient preferences (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
Indiana University
Primary completion
Dec 2013

Outcome Measures

OutcomeResultp-value
PRIMARY
Number of Patients Recording Preferences to Restrict Provider Access to Some or All Electronic Health Record (EHR) Data
45; 13
PRIMARY
Providers' Opinion of Patients' Controlling EHR Access

Summary

Health information technology, including health information exchange, offers the potential to improve care by providing an integrated view of relevant, integrated patient information from multiple health care providers practicing in multiple sites. However, realizing that potential can be difficult, particularly with respect sensitive information. Increasingly, patients, patient advocate groups, and even the National Coordinator for Health Information Technology are pushing for patients to have more granular control over specifically who can see what personal health information in their electronic health records. This will be a demonstration project aimed at showing the initial feasibility a system allowing patient controls on their electronic health records. Because of the exploratory nature of the research, the investigators do not have specific hypotheses. The investigators hope that this demonstration and feasibility project will lead to more extensive prospective evaluations of patient control of access to their health records and other tools for enhancing patient control over access to their health records.

Eligibility Criteria

Inclusion Criteria

For Patients:

  • all adults 18 years or older who were fluent in English and had visited the study primary care clinic at least twice in the previous year

For Providers:

  • all personnel of all types practicing in General Medicine Clinic, both Firms A and B, on the 4th floor of Wishard's Primary Care Center. For those physicians who agree to participate, attempted to recruit 10 patients who had visited their primary care physician at least twice in the previous 1 year.

Exclusion Criteria

  • will be lack of English fluency and inability to communicate due to physiologic or cognitive difficulties.
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01862133). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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