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N/A N=61 Treatment

Hematopoietic Stem Cell Transplant for Dyskeratosis Congenita or Severe Aplastic Anemia

Dyskeratosis Congenita · Aplastic Anemia

Enrolled (actual)
61
Serious AEs
0.0%
Results posted
May 2025
Primary outcome: Primary: Incidence of Neutrophil Engraftment — 100; 100; 96; 100 Percentage of participants

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Alemtuzumab (Drug); Fludarabine (Drug); Cyclophosphamide (Drug); Total Body Irradiation (Radiation); Stem Cell Transplant (Biological); Anti-thymocyte globulin (Drug)
Age
Pediatric, Adult, Older Adult · 0+ yrs
Sex
All
Sponsor
Masonic Cancer Center, University of Minnesota
Primary completion
Aug 2024

Outcome Measures

OutcomeResultp-value
PRIMARY
Incidence of Neutrophil Engraftment
100; 100; 96; 100
PRIMARY
Incidence of Platelet Engraftment
100; 100; 96; 100
SECONDARY
Incidence of Regimen Related Mortality
0; 6; 6; 0
SECONDARY
Incidence of Acute Graft-versus-host Disease
0; 11; 9; 0
SECONDARY
Incidence of Chronic Graft-versus-host Disease
0; 6; 0; 0
SECONDARY
Incidence of Chronic Graft-versus-host Disease
0; 6; 0; 0
SECONDARY
Incidence of Secondary Malignancies
0; 0; 0; 0

Summary

Fludarabine-based preparative regimen followed by an allogeneic hematopoietic stem cell transplant using related or unrelated donor in persons 0-70 years of age diagnosed with dyskeratosis congenita or severe aplastic anemia who have bone marrow failure characterized by a requirement for red blood cell and platelet transfusions. Three different preparative regimens are included based on disease and donor type.

Eligibility Criteria

Inclusion Criteria

  • Aged 0 - 70 years
  • Acceptable hematopoeitic stem cell donor
  • Dyskeratosis Congenita (DC) with evidence of BM failure defined as:
  • requirement for red blood cell and/or platelet transfusions or
  • requirement for G-CSF or GM-CSF or erythropoietin or
  • refractory cytopenias having one of the following three
  • platelets 30% blasts
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT02162420). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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