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N/A Completed N=6 Supportive Care

First Study With a Brain Implant to Help Locked-in Patients Communicate at Home

Locked-In Syndrome
Source: ClinicalTrials.gov NCT02224469 ↗
Enrolled (actual)
6
Serious AEs
83.3%
Results posted
Dec 2025
Primary outcomePrimary: Number of Participants Reaching Proficiency Level 2: Unsupervised BCI Performance — 1 Participants

Summary

In this study a new means of communication for people with locked-in syndrome will be tested. The investigators will record brain signals directly from the surface of the brain by means of a completely implantable system. These brain signals are fed wirelessly into an assistive technology device and will control this device for communication and environmental control at the users home.

Outcome Measures

OutcomeResultp-value
PRIMARY
Number of Participants Reaching Proficiency Level 2: Unsupervised BCI Performance
1
SECONDARY
Patient Device Satisfaction
3.5
SECONDARY
Effects Device on Quality of Life
2.43
SECONDARY
Quality of Life by Scoring Subjective Well-being in ACSA Score
2
SECONDARY
Hours of Use of BCI Device Per Day
21.26

Eligibility Criteria

Inclusion Criteria

  • Age 18 - 75
  • Locked-in status (i.e. severely paralyzed with communication problems)
  • in case of trauma or stroke: at least 1 year after the event
  • in case of a neuromuscular disease: slow progression allowed
  • Rudimentary form of communication possible (e.g. through assistive technology, eye blinks or eye movements, severely impaired speech)
  • Mentally and physically capable of giving informed consent
  • Lives in or close to the Netherlands
  • MR compatible
  • able to lie flat in the scanner
  • no metal objects in or attached to the body
  • no claustrophobia
  • Visus (largely) intact
  • Cognition intact (IQ>80)
  • Compatible with implantation procedure
  • good respiratory function or stable respiratory situation using ventilation assistance

Exclusion Criteria

  • Strong and frequent spasms
  • Vital indication for blood thinners
  • Current brain tumor or history of tumor resection
  • Quick medical or neurological deterioration
  • Patients who are considered legally incapable (and who therefore will not be able to give informed consent)
  • Current or recent psychiatric disorder
  • Catabolic state
  • Allergy to the materials of the implant
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT02224469). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication. Informational only — not medical advice.

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