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N/A N=301 Randomized Supportive Care

Individualized Patient Decision Making for Treatment Choices Among Minorities With Lupus

Systemic Lupus Erythematosus

Enrolled (actual)
301
Serious AEs
0.7%
Results posted
Jan 2017
Primary outcome: Primary: Change From Baseline in Decisional Conflict Scale Scores — 21.80; 12.69 units on a scale — p=0.005

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Computerized patient decision-aid (Other); Usual care (lupus pamphlet) (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
Female
Sponsor
University of Alabama at Birmingham
Primary completion
Nov 2016

Outcome Measures

OutcomeResultp-value
PRIMARY
Change From Baseline in Decisional Conflict Scale Scores
21.80; 12.69 0.005 sig
PRIMARY
Informed Choice (Validated Instruments for Values Regarding Immunosuppressives, Knowledge About Immunosuppressives, and Treatment Decision-making)
62; 46; 89; 101 0.08
SECONDARY
Control Preferences Scale: Patient Participation in Decision-making
33; 28; 2; 5 0.252
SECONDARY
Patient Physician Communication (Interpersonal Processes of Care (IPC)
83.64; 83.06 0.504
SECONDARY
Analysis of Audiotaped Physician-patient Interaction (Using the Active Patient Participation Coding Scheme (APPC)): Doctor Patient-centered Communication
5.1; 3.7 0.06
SECONDARY
Acceptability (Number of Participants Rating Each Statement as "Excellent")
74; 49; 64; 40; 76; 49 0.006 sig
SECONDARY
Feasibility (Number of Participants Rating the Feasibility of Using Decision-aid or Pamphlet- Referred to as Education Guide in This Statement)
1; 3; 1; 13; 73; 74 0.006 sig

Summary

The study will compare the efficacy of the usual education materials to individualized computerized decision guide on decision conflict of patients with lupus nephritis making treatment decisions regarding immunosuppressive therapies.

Eligibility Criteria

Inclusion Criteria

  • adult female lupus nephritis patients, currently having a flare of lupus nephritis and considering change or initiation of an immunosuppressive medication (current flare) or had had flare of lupus nephritis in the past and at risk for a future lupus nephritis flare (future flare)

Exclusion Criteria

  • male; lupus but no lupus nephritis; change in lupus immunosuppressive treatment already made for current flare; end stage renal disease on dialysis; renal transplant or candidate for a renal transplant
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT02319525). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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