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Phase 3 N=239 Randomized Quadruple-blind Treatment

Arimoclomol in Amyotropic Lateral Sclerosis

Amyotrophic Lateral Sclerosis

Enrolled (actual)
239
Serious AEs
23.4%
Results posted
Aug 2023
Primary outcome: Primary: Combined Assessment of Function and Survival (CAFS) — 0.51; 0.49 score on a scale — p=0.6208

Study Design & Population

Study type
Interventional
Phase
Phase 3
Interventions
Arimoclomol (Drug); Placebo (Drug)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
ZevraDenmark
Primary completion
Dec 2020

Outcome Measures

OutcomeResultp-value
PRIMARY
Combined Assessment of Function and Survival (CAFS)
0.51; 0.49 0.6208
SECONDARY
Time to Permanent Assisted Ventilation (PAV) / Tracheostomy / Death
NA; NA
SECONDARY
Change From Baseline to Week 76 (or End-of-trial) in the Revised ALS Functional Rating Scale (ALSFRS-R)
-15.4; -15.0
SECONDARY
Change From Baseline to Week 76 (or End-of-trial) in Percent (%) Predicted Slow Vital Capacity (SVC)
-30.65; -30.38

Summary

A multicenter, randomized, double-blind, placebo-controlled, parallel group trial to evaluate the efficacy and safety of arimoclomol in amyotropic lateral sclerosis (ALS)

Eligibility Criteria

Inclusion Criteria

  • Subject meets revised El Escorial criteria for clinically possible, clinically probable / clinically probable ALS laboratory-supported, clinically definite ALS or clinically definite familial ALS laboratory-supported
  • 18 months or less since first appearance of weakness (e.g. limb weakness, dysarthria, dysphagia, shortness of breath)
  • ALS Functional Rating Scale-Revised (ALSFRS-R) equal to or above 35 and erect (seated) Slow Vital Capacity (SVC) % predicted equal to or above 70% at Screening

Exclusion Criteria

  • Tracheostomy or use of non-invasive ventilation for more than 2 hours during waking hours at the time of Screening and Baseline
  • Pregnant or breast-feeding
  • Current or anticipated use of diaphragmatic pacing
  • Any other relevant medically significant condition which could present risk to the subject or interfere with the assessment of safety or has an increased risk of causing death during the trial
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT03491462). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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