N/A
N=966
Twitter Based Social Support for Hispanic and Black Dementia Caregivers
Loneliness · Emotional Stress
Bottom Line
View on ClinicalTrials.gov: NCT03865498 ↗Enrolled (actual)
966
Serious AEs
0.0%
Results posted
Jan 2025
Primary outcome: Primary: Number of Participants Who do Not Engage in Twitter Activities — 246; 226 Participants — p=< 0.0001
Study Design & Population
- Study type
- Interventional
- Phase
- N/A
- Interventions
- Twitter for Hispanic caregivers (Behavioral); Twitter for African American caregivers (Behavioral)
- Age
- Adult, Older Adult · 18+ yrs
- Sex
- All
- Sponsor
- Columbia University
- Primary completion
- Oct 2023
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Number of Participants Who do Not Engage in Twitter Activities |
246; 226 | < 0.0001 sig |
| PRIMARY Emotional Valence Score |
1.404; 1.483 | <0.0001 sig |
| SECONDARY Number of Auto-detected Small Groups |
259; 231; 262; 239 | — |
| SECONDARY Percentage of Balanced Triads |
0.00; 0.00; 0.21; 0.34 | — |
Summary
The prevalence of dementia is higher in Hispanics and African Americans than non-Hispanic Whites. Moreover, dementia caregivers often experience loneliness as well decreased health status. The expansion of social media use among Hispanics and African Americans, particularly Twitter - a short message service - offers great promise for improving social support. This study aims to evaluate changes of discussion topics, sentiment and networking styles (i.e., number of followers) among anonymous followers of our two Twitter networks; the African American/Black dementia caregiver group and the Hispanic dementia caregiver group.
Eligibility Criteria
Inclusion Criteria
- 18 years of age or older
- Black or Hispanic, living in the U.S. including the U.S. territories
- a dementia caregiver with any duration, able to speak English or Spanish/bilingual
- must agree to terms of conditions of use and privacy policy and rules of one of the two dementia caregiver network (Hispanic @dcnh, Black @dcnaab), the Twitter user agreement of the terms of service, Twitter privacy policy and Twitter rules including intellectual property, violence, misconduct, abuse behavior, private information and spam and security
- use a smartphone or a feature phone (i.e., a cell phone with text messaging)
Exclusion Criteria
- do not have de-identified Twitter account, children, not a dementia family caregiver
Data sourced from ClinicalTrials.gov (NCT03865498). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.