N/A
N=89
Education Tools to Support Pediatric Survivor Care
Cancer · Pediatric Cancer
Bottom Line
View on ClinicalTrials.gov: NCT04257058 ↗Enrolled (actual)
89
Serious AEs
2.3%
Results posted
May 2025
Primary outcome: Primary: Survivor Care Knowledge Scale — 10.6; 11.2 score on a scale
Study Design & Population
- Study type
- Interventional
- Phase
- N/A
- Interventions
- Electronic educational material (Behavioral)
- Age
- Adult · 18+ yrs
- Sex
- All
- Sponsor
- Emory University
- Primary completion
- Apr 2024
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Survivor Care Knowledge Scale |
10.6; 11.2 | — |
| SECONDARY Benefits for Survivor Care |
12.6; 12.9 | — |
| SECONDARY Barriers for Survivor Care |
20.2; 19.9 | — |
| SECONDARY Perceived Susceptibility for Late Effects |
9.7; 10.4 | — |
| SECONDARY Intentions for Survivor Care |
11.8; 11.4 | — |
| SECONDARY Change in Perceived Health Competence Scale (PHCS) |
28.7; 27.0 | — |
Summary
This study aims to evaluate the impact of electronic educational materials on adolescent and young adult (AYA) survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
Eligibility Criteria
Inclusion Criteria
- Patients must be 18-25 years of age,
- Diagnosed with cancer at ≤ 18 years of age,
- ≥ 2 years since the last cancer treatment,
- seen at least once in the Aflac Cancer Survivor Program (CSP) in the past 2 years or transitioned out of the Aflac CSP to adult survivor care since 2013.
Exclusion Criteria
- Patients will be excluded from participation in the study if the participant is non-English speaking.
- Young adult survivors who are cognitively impaired and unable to complete the questionnaires.
- Participants that do not consent to the recording of their interviews.
Data sourced from ClinicalTrials.gov (NCT04257058). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.