N/A
N=16
Support Via Technology: Living and Learning With Advancing FTD
Caregivers Burnout · Frontotemporal Dementia
Bottom Line
View on ClinicalTrials.gov: NCT05338710 ↗Enrolled (actual)
16
Serious AEs
0.0%
Results posted
Nov 2025
Primary outcome: Primary: Revised Memory and Behavior Problems Checklist (RMBPC) — 28.5; 25.2; 16.6; 15.8 units on a scale
Study Design & Population
- Study type
- Interventional
- Phase
- N/A
- Interventions
- STELLA-FTD (Other)
- Age
- Adult, Older Adult · 18+ yrs
- Sex
- All
- Sponsor
- Oregon Health and Science University
- Primary completion
- Mar 2022
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Revised Memory and Behavior Problems Checklist (RMBPC) |
28.5; 25.2; 16.6; 15.8 | — |
| SECONDARY Quality of Life Alzheimer's Disease, Care Partner |
37.6; 36.2 | — |
| SECONDARY Family Caregiver Self-Efficacy Scale |
61.1; 62.8 | — |
| SECONDARY Center for Epidemiologic Studies Depression |
10.8; 11.3 | — |
| SECONDARY Marwit Meuser Caregiver Grief Index |
54.2; 55.3 | — |
| SECONDARY Caregiver Guilt Questionnaire (CGQ) |
2.23; 1.92; 2.31; 2.46; 4.38; 4.77 | — |
| SECONDARY Experience Survey |
13; 13; 12; 13; 13; 13 | — |
| SECONDARY Ten-Item Personality Inventory (TIPI) |
51 | — |
| SECONDARY Sleep Hygiene Index |
10.2 | — |
| SECONDARY Contact Survey |
11; 2 | — |
Summary
Much effort over the last several decades has been devoted to developing and implementing psychoeducational interventions for family caregiving partners for those with Alzheimer's and relatedm dementias (ADRD). However, few interventions address the specific needs of care partners for those with frontotemporal degeneration (FTD).
This study tests an intervention to support family caregivers for those with FTD.
Eligibility Criteria
Inclusion Criteria
- Care Partner for family member, close friend or kin with FTD, primary progressive aphasia, progressive supranuclear palsy or other frontotemporal degenerative dementia
- Must speak English
- Must be able to see and hear the videoconference-based interactions.
Exclusion Criteria
- Family member does not care for someone with FTD conditions.
Data sourced from ClinicalTrials.gov (NCT05338710). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.