N/A N=210 A Representational Intervention to Promote Preparation for End-of-life Decision Making
End Stage Renal Disease
Primary: Dyad Congruence — 48; 64 percentage of congruent dyads — p=<.05
Clinical Trial Search
Completed trials with posted results — search by concept, filter by the parameters that matter at the bedside.
N/A N=40 Shared Decision Making to Improve Palliative Care in the Nursing Home
Pain
Primary: Difference in Mean Patient Health Questionaire 9 Score From Baseline — .74; 3.38 units on a scale — p=<.009
N/A N=414 Preparing Older Veterans With Serious and Chronic Illness for Decision Making
Aging
Primary: New Advance Care Planning Documentation in the Medical Record at 9 Months — 35; 25 percentage of participants
N/A N=242 Preparation for End-of-Life Decision Making in Mild Dementia
Dementia
Primary: Dyad Congruence With Goals-of-Care Tool — 9; 4; 11; 24 Participants
N/A N=63 Enhancing & Mobilizing the POtential for Wellness & Emotional Resilience Among Surrogate Decision-Makers of ICU Patients
Critical Illness · Communication Disabilities
Primary: Change in Peritraumatic Distress Inventory — 14.6; 14.2; 13.0; 14.4 score on a scale
N/A N=416 Improving Decision Making for Patients With Prolonged Mechanical Ventilation
Surrogate Decision Makers · Prolonged Mechanical Ventilation
Primary: Change in Clinician-surrogate Concordance Scale Score — -6.6; -4.8; 33.6; 34.3 score on a scale — p=<0.05
N/A N=200 Intuition vs. Deliberation in Medical Decision Making
Decision Making About Life-sustaining Treatment in Patients With Serious Cardiac, Respiratory and Oncological Conditions Likely to Limit Life Expectancy
Primary: Acceptance or Refusal of a Feeding Tube for Chronic Aspiration — 41; 45; 56; 57 Participants
N/A N=102 Shared Decision Making in Dialysis
End Stage Renal Disease · Chronic Kidney Diseases
Primary: Mean Feasibility of Intervention Measure — 16.4; 16.1; 19.0 score on a scale
N/A N=202 Shared Decision-Making for Elderly Depressed Primary Care Patients
Depression
Primary: Number of Participants Who Adhered to Physician Recommended Treatment — 40; 16 Participants
N/A N=971 Shared Decision Making in Parents of Children With Head Trauma: Head CT Choice
Head Injury
Primary: Assess Parents' Knowledge Regarding Their Child's Risk for a Significant Brain Injury — 6.2; 5.26 Number of questions correct out of 10
N/A N=104 Decision Making Support for Parents and Caregivers
Neonatal Critical Illness · Pediatric Critical Illness
Primary: Enrollment Rate (Critically Ill Infants) — 24; 30 Participants
N/A N=133 Shared Medical Decision Making in Pediatric Diabetes
Type 1 Diabetes Mellitus
Primary: Continuous Glucose Monitor Use Profile or Insulin Pump Use Profile — 32.5; 34.2; 40.1; 35.7 score on a scale — p=<0.39
N/A N=192 Involving Nursing Home Residents and Their Families in Acute Care Transfer Decisions
Chronic Disease · Acute Disease
Primary: Preparation for Decision Making — 39.59; 36.00 score on a scale — p=0.046
N/A N=66 Shared Decision Making Aid for Prosthetic Design
Amputation · Prosthesis User
Primary: Number of Participants Who Participated in and Completed 1 Hour Qualitative Interview Data Collection Via a Semi Structured Interview Guides — 38; 17; 11 Participants
N/A N=132 The Influence of Default Options in Advance Directives
Advance Care Planning
Primary: Proportion of Subjects Who Select Palliative Care Options — 31; 50; 47 percentage who select palliative care
N/A N=302 Goals of Care: A Nursing Home Trial of Decision Support for Advanced Dementia
Dementia
Primary: Quality of Communication and Decision-making — 6.0; 5.6; 3.7; 3.0 units on a scale
N/A N=429 Decisions About Cancer Screening in Alzheimer's Disease
Cancer, Breast · Alzheimer Disease
Primary: Decisional Conflict Scale — -1.9; -0.8 Units on DCS scale — p=0.4393
N/A N=120 A Culturally Sensitive Values-Guided Aid for End of Life Decision-Making
Congestive Heart Failure · Chronic Obstructive Pulmonary Disease · Cirrhosis
Primary: Presence of Discussions About End of Life Care Goals/Wishes — 13; 8 participants — p=.77
N/A N=131 Pilot Evaluation of Hospice Decision Support Tools
Hospice · End-of-life Decision Making · Hospice Decision Making
Primary: Hospice Knowledge Scale — 18; 17 score on a scale
N/A N=293 Decision Making and Implementation of Aging-in-Place/Long Term Care Plans Among Older Adults
Alzheimer Disease · Mild Cognitive Impairment · Long-Term Care Planning
Primary: Rate of Participant Long Term Care Planning for Alzheimer's Dementia/Memory Loss — 173 Participants — p=.6539
N/A N=98 Development & Testing of a Decision Aid for LVAD Placement
End-Stage Heart Failure · Bridge-to-Transplant LVAD Placement (BTT) · Destination Therapy LVAD Placement (DT)
Primary: Left Ventricular Assist Device (LVAD) Knowledge Scale — 45.6; 43.8 units on a scale
N/A N=831 Understanding Factors in Decision Making for Children With Medical Complexity
Multiple Chronic Conditions · Children With Medical Complexity
Primary: Decision Readiness — 77.3; 79.1; 79.1; 78.5 score on a scale
N/A N=64,915 Improving Communication for Primary Care Patients
Advance Care Planning · Dementia
Primary: Number of Patients 65 and Older With New Documentation of Any Advance Directive in the Electronic Health Record (EHR) — 2190; 2130; 255; 409 Participants
N/A N=50 Syncope Decision Aid for Emergency Care
Syncope
Primary: Number of Participants at End of Study — 20; 24 Participants
N/A N=445 PCORI-1310-06998 Trial of a Decision Support Intervention for Patients and Caregivers Offered Destination Therapy Heart Assist Device
Heart Failure · Heart-assist Devices
Primary: Reach of Intervention — 107; 64 Participants
N/A N=825 Shared Decision-Making for Colorectal Cancer Screening
Colorectal Cancer
Primary: Patient Adherence (Test Completion) — 104; 116; 96 participants — p=0.046
N/A N=65 Engaging Families to Improve the Care of Patients With Hypospadias
Hypospadias
Primary: Percent of Eligible Parents Screened (Feasibility) — 90.5 percentage of parents recruited
N/A N=539 Online Trial Examining Validity and Reliability of the Shared Decision Making Process Survey
High Cholesterol · High Blood Pressure · Colorectal Cancer
Primary: Shared Decision Making Process Measure — 2.12; 2.65; 1.61; 1.4 score on a scale
N/A N=93 Development and Implementation of Electronic Decision Aids for Genetic Testing in Inherited Cancer Syndromes
Genetic Testing
Primary: Participant Satisfaction With How Educational Information is Presented in the Decision Aid — 1; 3; 29; 55 Participants
N/A N=4,779 Palliative Care Educator
Advance Care Planning · Palliative Care · Alzheimer's Disease and Related Dementias
Primary: Identification of a Goals of Care Conversation in the Electronic Health Record (EHR) During the Index Hospitalization — 3744; 2396 Participants