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Advance care planning documentation associated with lower life-sustaining treatment and higher hospice enrollment in older US adultsDoes having a plan change how you spend your final days?

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Key Takeaway
Note that advance care planning documentation associates with lower life-sustaining treatment and higher hospice enrollment, but associations are not causal.

This observational study analyzed data from the Health and Retirement Study exit interviews involving 5,622 decedents representing 23.2 million individuals in the United States. The analysis categorized advance care planning documentation into none, one document (living will or durable power of attorney), or two documents (both). The primary focus was on associations with end-of-life care outcomes, including intensive care unit use, life-sustaining treatment, hospice enrollment, and out-of-hospital death.

Results indicated that having any documentation was associated with a lower likelihood of life-sustaining treatment (aRR=0.85; 95% CI: 0.74 to 0.98) and a higher likelihood of hospice enrollment (aRR=1.43; 95% CI: 1.28 to 1.60) and out-of-hospital death (aRR=1.11; 95% CI: 1.06 to 1.18). No association was found between documentation and ICU use. The incremental benefits of having two documents versus one were modest.

Associations were stronger among decedents with expected death and attenuated among those with unexpected death. This study used adjusted risk ratios to assess relationships, noting that associations were reported rather than causation. No safety data or adverse events were reported. These findings suggest that documentation within care planning processes is linked to specific end-of-life care patterns, though observational design limits causal inference.

Imagine facing the end of life without a clear plan. Would you want to be in an intensive care unit or receive aggressive treatments? A large study looked at over 5,600 adults in the U.S. who passed away. These people were part of a national survey that asked families about their care plans before death. The researchers found that having any written documentation changed the picture compared to having no plan at all.

People with some form of advance care planning were less likely to receive life-sustaining treatments. They were also more likely to enroll in hospice care and more likely to pass away at home rather than in a hospital. However, having two documents did not lower the risk of ICU use. The study also noted that the benefits of having two documents were modest compared to having just one.

This research comes from an observational study, meaning it shows associations, not cause and effect. We cannot say for sure that writing a document caused these changes. The findings suggest that talking about wishes and putting them in writing matters for how care is delivered. But the extra value of adding a second document was not huge.

What this means for you:
Any advance care plan links to less aggressive treatment and more hospice use, but two documents offer only modest extra benefits.

Study Details

EvidenceLevel 5
PublishedApr 2026
View Original Abstract ↓
Background: Advance care planning (ACP) documentation, including living wills and durable power of attorney (DPOA), is intended to support goal concordant end of life care. However, it is unknown if comprehensive documentation confers additional benefits, and how these associations vary across clinical contexts. Methods: We used 2010 to 2022 Health and Retirement Study exit interview data to examine associations between ACP documentation and end of life care among U.S. adults aged 50 years and older. Documentation was categorized as none, one document (living will or DPOA), or two documents (both). Outcomes included intensive care unit (ICU) use, life sustaining treatment, hospice enrollment, and out-of-hospital death. Modified Poisson regression models were used to estimate adjusted risk ratios (aRRs), and temporal trends in documentation were assessed using joinpoint regression. Results: Among 5,622 decedents representing 23.2 million individuals, 42.7% had two documents and 28.9% had none, documentation increased substantially around 2014. Compared with no documentation, having any documentation was associated with lower likelihood of life-sustaining treatment (aRR=0.85, 95% CI: 0.74 to 0.98) and higher likelihood of hospice enrollment (aRR=1.43, 95% CI: 1.28 to 1.60) and out-of-hospital death (aRR=1.11, 95% CI: 1.06 to 1.18), but not ICU use. Having two documents showed similar patterns, with modest differences compared with one document after adjustment. Associations were stronger among decedents with expected death and attenuated among those with unexpected death. Conclusions: Comprehensive ACP documentation is associated with less aggressive end of life care and greater hospice use, though the incremental benefits of two documents are modest. Findings highlight the importance of documentation within care planning processes and the clinical context.
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