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N/A N=286 Randomized Single-blind Supportive Care

Caregiver Outlook: An Intervention to Improve Caregiving in Serious Illness

Heart Failure · Pulmonary Disease · Cancer

Enrolled (actual)
286
Serious AEs
8.4%
Results posted
Apr 2017
Primary outcome: Primary: Caregiver Anxiety — 6.9; 7.3; 5.9; 5.4 units on a scale — p=<0.511

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Preparation and life completion (Other); Attention Control (Other)
Age
Adult, Older Adult · 18+ yrs
Sex
All
Sponsor
VA Office of Research and Development
Primary completion
Dec 2015

Outcome Measures

OutcomeResultp-value
PRIMARY
Caregiver Anxiety
6.9; 7.3; 5.9; 5.4; 5.8; 6.4 <0.511
SECONDARY
Spirituality
35.4; 37.3; 36.1; 37.3; 37.3; 36.6 0.5225
SECONDARY
Depression
8.2; 8.8; 8.7; 8.0; 8.3; 9.0 <0.3332
SECONDARY
Patient Days of VA Hospital Use
4.4; 4.4 0.8748
SECONDARY
Caregiver Burden
4.2; 4.2; 4.2; 4.2; 4.2; 4.1 0.7687
SECONDARY
Caregiver Completion
2.7; 2.8; 2.5; 2.6; 2.5; 2.7 0.9221
SECONDARY
Prolonged Grief - Number of Participants With Anticipatory Grief
6; 2; 2; 3; 2; 2
SECONDARY
Caregiver Preparation
2.7; 2.4; 2.4; 2.7; 2.6; 2.6

Summary

Informal caregivers provide a majority of care for patients during serious illness. Lack of preparation and completion may leave caregivers less capable of caring for a loved one or making crucial decisions influencing care. This study will examine whether a preparation and completion intervention reduces caregiver anxiety, depression, anticipatory grief, and burden and improves patient quality of life and health care use.

Eligibility Criteria

Inclusion Criteria

  • Patients with advanced cancer/Congestive heart failure/COPD/End stage renal disease who have a primary caregiver. Caregivers of Durham VAMC patients with advanced disease.

Exclusion Criteria

  • No caregiver present.
  • Caregiver with Cognitive impairment/inability to speak on phone/non-English speaking
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01672294). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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