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N/A N=23 Randomized Quadruple-blind Treatment

Obstructive Sleep Apnea and Neurocognitive and Cardiovascular Function in Children With Down Syndrome

Down Syndrome · Obstructive Sleep Apnea Syndrome

Enrolled (actual)
23
Serious AEs
0.0%
Results posted
Feb 2016
Primary outcome: Primary: Change in Epworth Sleepiness Scale From Baseline to End of Study — -1; -0.5; 1 units on a scale

Study Design & Population

Study type
Interventional
Phase
N/A
Interventions
Continuous positive airway pressure (Device); Sham or placebo continuous positive airway pressure (Device)
Age
Pediatric, Adult · 8+ yrs
Sex
All
Sponsor
Children's Hospital of Philadelphia
Primary completion
Mar 2014

Outcome Measures

OutcomeResultp-value
PRIMARY
Change in Epworth Sleepiness Scale From Baseline to End of Study
-1; -0.5; 1
SECONDARY
Change in Child Behavior Checklist (CBCL) Total Score From Baseline to 4 Months
-2; 2; 2
SECONDARY
Change in the Left Ventricular (LV) Mass Index Score From Baseline to 4 Months
-0.06; -1.18; 0.36
SECONDARY
Change in the Distance Walked on a 6 Minute Walk Test From Baseline to 4 Months

Summary

Many individuals with Down syndrome (DS) have breathing problems during sleep. This is called obstructive sleep apnea syndrome (OSAS). OSAS is very common in individuals with Down syndrome because of the shape of their face and tongue and because of their low muscle tone. OSAS can cause a lot of health problems including behavioral and learning problems as well as heart problems. The purpose of this research study is to look at the effects of treating OSAS in individuals with Down syndrome with a machine called Continuous Positive Airway Pressure (CPAP). The investigators want to see if treatment of OSAS improves learning, behavior and heart problems.

Eligibility Criteria

Inclusion Criteria

  • Aged 8-20 years
  • Down syndrome (based on the characteristic phenotype)
  • Families provide informed consent and child provides assent

Exclusion Criteria

  • Subjects and families who do not speak English well enough to undergo psychometric testing.
  • Subjects living in institutions where there is no primary caregiver to participate in the neurocognitive/behavioral battery.
  • Major chronic lung disease such as chronic aspiration.
  • Previous or current CPAP therapy.
  • Participation in a weight loss program.
  • Craniofacial or neuromuscular conditions other than those associated with DS.
  • Untreated hypothyroidism. Participants with normal thyroid function tests will be included in the study.
View full record on ClinicalTrials.gov →

Data sourced from ClinicalTrials.gov (NCT01808508). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.

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