N/A
N=38
Personalized Experiences to Inform Improved Communication for Minorities With Life Limiting Illness
COPD · Heart Failure · Cancer
Bottom Line
View on ClinicalTrials.gov: NCT03391115 ↗Enrolled (actual)
38
Serious AEs
0.0%
Results posted
Dec 2019
Primary outcome: Primary: Number of Completed Exit Interviews From Patients on Feasibility of Their Use of Their Narrative Integrated Into EHR — 20; 18 Participants
Study Design & Population
- Study type
- Observational
- Phase
- N/A
- Interventions
- Storytelling Intervention for Patient Participants (Behavioral); Storytelling Intervention for Nurse Participants (Behavioral)
- Age
- Adult, Older Adult · 18+ yrs
- Sex
- All
- Sponsor
- University of Colorado, Denver
- Primary completion
- Nov 2018
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Number of Completed Exit Interviews From Patients on Feasibility of Their Use of Their Narrative Integrated Into EHR |
20; 18 | — |
Summary
The purpose of this research is to develop patient-centered palliative care interventions to improve patient-provider communication and Quality of Life (QoL) of ethnic and racial minority patients living with life-limiting illnesses. Eliciting personal experiences is an effective way for patients to communicate their cultural values and beliefs. This study will assess how to integrate the patients' personal experience narratives into the electronic health record (EHR). The primary hypothesis is that the implementation of a patient-centered intervention to elicit personal experiences that are included in the EHR will improve patient-provider communication and patients' QoL.
Eligibility Criteria
Inclusion Criteria: Patients
- 18 years of age or older
- able to read English
- capable of giving informed consent
- self-identifying as part of a racial or ethnic minority
- diagnosed with at least one LLI. The operational definition of LLI eligible for this study includes the following diagnoses:
- metastatic solid cancer or inoperable lung cancer;
- COPD with FEV1 values < 35% predicted or oxygen dependence;
- New York Heart Association Class III or IV heart failure (CHF).
Inclusion criteria: Nurse
- 18 years of age or older
- Confirm verbally that they were involved in the care of a patient who is participating in the storytelling intervention
Data sourced from ClinicalTrials.gov (NCT03391115). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.