Mode
Text Size
Log in / Sign up

Multifaceted Experiences and Management Strategies for Patients Living with Post-Stroke FatigueCaregivers and Doctors Need Better Awareness of Stroke Fatigue

AI-generated summary of the cited source, checked by automated accuracy review. How we work

Key Takeaway
Improved awareness and tailored management are essential to address the multidimensional challenges of post-stroke fatigue.

Post-stroke fatigue (PSF) is a complex, multidimensional condition that significantly impacts the daily lives of survivors. This meta-synthesis identifies that PSF is influenced by a combination of physiological, psychological, and situational factors, all of which shape how patients cope with their symptoms.

Evidence suggests that while patients experience profound physical and mental exhaustion, there is a significant gap in awareness among support networks. Both family members and clinical staff often lack the specific knowledge required to provide adequate support or recognize the severity of the condition.

Management of PSF currently relies heavily on patient self-management, with complementary roles played by those providing care. However, current rehabilitation needs remain largely unmet. There is a clear necessity for improved measurement tools and more personalized management strategies to address these gaps.

To improve outcomes, clinical practice should focus on increasing education for support networks and integrating comprehensive fatigue management into standard stroke rehabilitation protocols.

How this fits prior evidence

This meta-synthesis addresses a gap in understanding the subjective experience and management of post-stroke fatigue (PSF). While previous coverage has identified specific stroke complications such as dizziness in patients with infratentorial lesions, this synthesis focuses on the multidimensional nature of fatigue and the unmet rehabilitation needs of those affected. It provides qualitative context to the patient experience that is not captured by the clinical outcomes or physiological markers discussed in other reported findings.

This review looked at the experiences of people living with post-stroke fatigue (PSF). It also examined how caregivers and healthcare professionals view this condition. The findings show that fatigue is not a simple symptom. Instead, it is multidimensional and influenced by many different factors, including physical health, mental well-being, and daily situations.

One major finding is that current awareness of stroke fatigue among healthcare workers and family members is often low. Because of this, many rehabilitation needs for patients remain unmet. The study suggests that while patients must manage their own energy, they need more support from those around them to cope with the various factors that make fatigue harder to manage.

Because this was a qualitative synthesis rather than a clinical trial, it does not provide specific treatment numbers or proven medical outcomes. It highlights the need for better tools to measure fatigue and more education for staff. Patients should talk to their doctors about how fatigue impacts their daily lives to develop a personalized management plan.

What this means for you:
Stroke fatigue is complex and influenced by many factors, requiring better awareness from healthcare teams.

Common questions

What makes stroke fatigue so complex?

The study found that post-stroke fatigue is multidimensional. It is not just one simple symptom but is influenced by a mix of physiological, psychological, and situational factors. These various elements can significantly impact how a patient feels and their ability to cope with daily activities.

How do caregivers and doctors help?

While patients primarily manage their own fatigue, the study shows that healthcare professionals and caregivers play important complementary roles. However, there is currently a need for better awareness among these professionals to ensure that rehabilitation needs are met and that management is personalized.

What are the main challenges in treating stroke fatigue?

The review highlights that many rehabilitation needs remain unmet because of low awareness among stakeholders. There is a specific need for better measurement tools, more education for staff, and increased involvement from caregivers to help patients manage their symptoms effectively.

Study Details

Study typeMeta analysis
EvidenceLevel 1
PublishedJul 2026
View Original Abstract ↓
IntroductionPost-stroke fatigue (PSF) is a common, persistent, and disabling complication in stroke survivors that significantly impairs quality of life. While most existing studies have used quantitative methods, qualitative evidence concerning patients’ fatigue experiences and the perceptions and coping strategies of relevant stakeholders remains limited. This study aimed to synthesise the experiences of fatigue among patients with PSF based on the Theory of Unpleasant Symptoms and to explore the perceptions and attitudes of patients, caregivers, and healthcare professionals.MethodsA qualitative systematic literature review and meta-synthesis was conducted following JBI methodology. Nine databases, including PubMed, Web of Science, and CNKI, were searched from inception to 25 March 2025. Eligibility criteria were developed using the PICoS framework. Qualitative studies and mixed-methods studies with extractable qualitative data involving patients with PSF, caregivers, or healthcare professionals were included. Study quality was assessed using the JBI Critical Appraisal Checklist for Qualitative Research.ResultsTwelve studies were included. The synthesis of 30 research findings generated four synthesised findings: (1) the fatigue symptom experience of patients with PSF is multidimensional; (2) the influencing factors are multifaceted and significantly affect patients’ coping attitudes; (3) awareness of PSF among patients, caregivers, and healthcare professionals needs to be improved, while rehabilitation needs remain unmet; and (4) PSF management primarily depends on patient self-management, with healthcare professionals and caregivers playing complementary roles.DiscussionPSF is characterized by a multidimensional symptom experience influenced by physiological, psychological, and situational factors. There is an urgent need to develop appropriate measurement tools, strengthen education, implement personalized management strategies, and increase caregiver involvement. PROSPERO (CRD420251037784).Systematic review registrationhttps://www.crd.york.ac.uk/PROSPERO/view/CRD420251037784.
Free Newsletter

Clinical research that matters. Delivered to your inbox.

Join thousands of clinicians and researchers. No spam, unsubscribe anytime.