N/A
N=883
Barriers to Mental Healthcare Utilization in Parkinson's Disease
Parkinson's Disease · Depression · Anxiety
Bottom Line
View on ClinicalTrials.gov: NCT01167608 ↗Enrolled (actual)
883
Serious AEs
0.0%
Results posted
Jul 2014
Primary outcome: Primary: Most Commonly Reported Past Barrier to Mental Health Services: "Anyone in my Situation Would be Struggling" — 74.8 percentage of total respondents
Study Design & Population
- Study type
- Observational
- Phase
- N/A
- Interventions
- No Intervention. This is a cross-sectional survey study. (Other)
- Age
- Adult, Older Adult · 18+ yrs
- Sex
- All
- Sponsor
- Rutgers, The State University of New Jersey
- Primary completion
- Mar 2013
Outcome Measures
| Outcome | Result | p-value |
|---|---|---|
| PRIMARY Most Commonly Reported Past Barrier to Mental Health Services: "Anyone in my Situation Would be Struggling" |
74.8 | — |
| PRIMARY 2nd Most Commonly Reported Past Barrier to Mental Health Services: "Doctors Are Not Sensitive Enough to PD-related Issues" |
54.8 | — |
| PRIMARY 3rd Most Commonly Reported Past Barrier to Mental Health Services: "Out of Pocket Cost Was Too High" |
40.8 | — |
| PRIMARY Most Commonly Reported Future Barrier to Mental Health Services: "Out of Pocket Cost Was Too High" |
64.0 | — |
| PRIMARY 2nd Most Commonly Reported Future Barrier to Mental Health Services: "Doctors Are Not Sensitive Enough to PD-related Issues" |
58.7 | — |
| PRIMARY 3rd Most Commonly Reported Future Barrier to Mental Health Services: "Services Are Not Available in my Community" |
52.0 | — |
Summary
Parkinson's disease (PD) is the second most common neurodegenerative disorder in the elderly. In most people, the illness is complicated by co-occurring psychiatric problems such as depression and anxiety. These non-motor concerns negatively affect the course and management of the disease, often leading to poor outcomes for both patients and their families. Despite these deleterious consequences, psychiatric symptoms in PD are both underreported by patients as well as under-recognized and under-treated by health care providers.
The primary purpose of this study is to identify and describe barriers to mental healthcare utilization for people with Parkinson's disease. Secondary objectives include the assessment of attitudes and preferences regarding the need for mental health services in the PD community and the acceptability of telehealth interventions as a method for improving access and quality of care. In order to accomplish these aims, participants will be asked to fill out an anonymous survey which will take about 15-30 minutes to complete. To best accommodate PD patients with varying levels of disability, participants will have the option to complete the survey online, on paper, or over the phone. The information obtained from this study will be used to support future treatment development efforts (i.e., phone and internet based interventions, community based trainings with local providers) intended to improve access and quality of mental health care for people with PD. To the best of the investigators knowledge, this is the first study to systematically examine barriers to mental healthcare utilization in PD in a national sample.
Eligibility Criteria
Inclusion Criteria
- Diagnosis of Parkinson's disease
- At least 18 years of age
Exclusion Criteria
- Less than 18 years of age
We are looking for responses from those who have, as well as those who have not, had mental health treatment in the past.
Data sourced from ClinicalTrials.gov (NCT01167608). Outcome figures and adverse-event rates are extracted automatically from the registry's posted results and are provided for clinician reference, not as a substitute for the primary publication.