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Participatory body mapping and virtual consultation workshops co-create patient-centered definitions of early mobility after cardiac surgeryNew Participatory Model Helps Define Early Mobility After Cardiac Surgery

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Key Takeaway
Consider this participatory model to improve the inclusion of patient-centered perspectives in early mobility research.

This guideline presents a participatory research methodology designed to engage people with lived experience of early mobility after cardiac surgery in the intensive care unit. The approach integrates body mapping with virtual consultation workshops using the nominal group technique to co-create research elements.

The methodology successfully facilitated the co-creation of an understanding of the embodied experience, a patient-centered definition of early mobility, and a list of prioritized barriers, facilitators, and outcome measures. By utilizing these tools, the model aims to broaden the types of knowledge used to guide research and improve healthcare outcomes.

A noted limitation is the current lack of guidance regarding the operationalization of body mapping and virtual consensus building. While the model improves the accessibility of arts-based research methods for researchers, it is a methodological framework rather than a clinical trial of an intervention's efficacy on patient outcomes.

How this fits prior evidence

This guideline addresses a gap in how research incorporates the lived experience of patients following cardiac surgery. While prior coverage has explored mHealth feasibility and perioperative sleep management in cardiac surgery patients, this methodology specifically focuses on the co-creation of patient-centered definitions and identifying barriers to early mobility through participatory tools.

Researchers developed a new method to better understand how patients experience moving and exercising shortly after cardiac surgery. This study focused on people who have lived through the intensive care unit (ICU) and the early stages of recovery. By using a participatory approach, the team aimed to capture the physical and emotional reality of early mobility.

The method included body mapping and virtual consultation workshops. These tools allowed patients to help create a definition of early mobility that focuses on their actual experiences. The process also helped identify specific barriers and facilitators that affect how patients move after surgery. This approach helps researchers gather a wider range of information to improve future care.

It is important to note that this study describes a research model rather than a clinical trial. It does not test the effectiveness of a specific medical treatment or exercise program. Instead, it provides a way for researchers to better include patient voices. Because the study is a methodology report, the results are intended to improve how research is conducted rather than providing immediate clinical changes.

What this means for you:
A new research model uses patient input to better define and improve early mobility after heart surgery.

Common questions

What is the goal of this new research model?

The goal is to improve how researchers gather information from patients. By using body mapping and virtual workshops, the model helps create a patient-centered definition of early mobility. It also helps identify specific barriers and facilitators that patients face when trying to move after cardiac surgery in the intensive care unit.

How does this help patients after heart surgery?

This model helps by ensuring that the voices of people with lived experience are included in research. By identifying what makes moving easier or harder, the results can be used to guide future research and improve the types of knowledge used to design better healthcare for cardiac patients.

Is this a new treatment for heart patients?

No, this is not a clinical trial of a new treatment or exercise program. It is a methodology study that describes a way for researchers to better understand the embodied experience of patients. It is intended to improve research methods rather than provide a direct medical intervention.

Study Details

Study typeGuideline
EvidenceLevel 5
PublishedOct 2026
View Original Abstract ↓
Patient engagement in research (PER) is increasingly recognized to enhance health research and facilitate the translation of research findings into practice. This occurs through integrating the knowledge, perspectives, and priorities of people with living/lived experience (PWLE) who receive or support those receiving care. Current approaches to PER emphasize verbal methods, where the thoughts and opinions of PWLE are shared in advisory groups, one-on-one or research group meetings, and town halls. While valuable, these methods often limit the expression of complex experiences, senses, and emotions that are difficult to articulate in words. Arts-based research methods involve individuals creating art, allowing for the exploration of embodied knowledge. Various types of art can be employed, including visual art, poetry, music, digital storytelling, and body mapping. Body mapping is an emerging arts-based research method that involves PWLE creating a life-sized tracing of their body in a position of their choice. The tracing is then filled based on reflections on guided questions about their healthcare experience using self-selected types of visual art and words. The knowledge gained from body mapping can be used to develop PWLE-informed recommendations on research directions, barriers and facilitators, and outcome and experience measures through subsequent virtual consultation workshops using the nominal group technique for consensus-building. While body mapping and virtual consensus building are promising approaches to generating future research questions and outcome measures, guidance related to their operationalization is lacking. This paper describes a model of a participatory approach to guiding research directions based on lived/living experiences through body mapping and subsequent virtual consultation workshops. The use of the model to explore the lived experience of early mobility after cardiac surgery while in the intensive care unit is used throughout as a case example. Using this model, we co-created an understanding of the embodied experience of early mobility after cardiac surgery in the intensive care unit, a patient-centred definition of early mobility, and generated and prioritized barriers and facilitators to early mobility along with outcome and experience measures to consider in future research. This model improves the accessibility of arts-based research methods for researchers engaging patients. In this way, researchers have more tools in their toolkit to broaden the types of knowledge that can be used to guide research and improve healthcare.
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