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Online patient education materials for breast reconstruction show low usability and high reading levelsOnline Breast Reconstruction Resources Often Hard for Patients to Read

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Key Takeaway
Note that most online breast reconstruction materials have high reading levels and low actionable content scores.

This systematic review and meta-analysis evaluated 1634 online patient education materials (OPEMs) related to breast reconstruction, including 1038 websites and 596 videos. The analysis focused on readability, quality, and usability metrics to determine the effectiveness of digital resources for patients.

Findings indicate that OPEMs are generally difficult to read, with a mean Flesch-Kincaid Grade Level of 12.68 and a SMOG score of 12.29, indicating college-level difficulty. Quality scores via DISCERN were 2.72/5, showing wide variability. Usability metrics were notably low: only 61.9% of materials were rated as understandable, and only 21.9% were considered actionable according to PEMAT criteria.

The authors identified several critical limitations in current online content, including deficiencies in risk disclosure, a lack of citation use, and limited language accessibility. Furthermore, there was limited racial and ethnic representation across the sampled materials. While academic and institutional sources outperformed patient-generated or AI-based content, they still fell short of established standards.

Clinically, these results suggest that patients may encounter incomplete or inaccessible information when searching for breast reconstruction resources online. Providers should be aware that many digital tools lack sufficient actionability to support informed decision-making.

Researchers reviewed over 1,600 pieces of online educational material, including websites and videos, regarding breast reconstruction. They looked at how easy these resources were to read, their quality, and how useful they were for people trying to understand their options.

The study found that most materials are written at a high level, often requiring a college education to understand easily. Furthermore, only about 21.9% of the content was considered actionable, meaning it did not provide clear steps for patients to take. There were also concerns regarding limited diversity and a lack of clear risk disclosures in many sources.

Because much of this information is complex or incomplete, patients should be cautious when searching online. While academic and institutional websites tend to perform better than social media or AI-generated content, they still often fall short of high standards for clarity. Patients may need to work closely with their medical team to navigate these resources.

What this means for you:
Many online breast reconstruction resources are difficult to read and may lack clear instructions for patients.

Common questions

How useful are these online materials for patients?

The usefulness of these materials is often limited. Only 21.9% of the content was found to be actionable, meaning it did not provide clear steps for patients to take. Many sources also lacked sufficient information regarding risks or specific instructions.

Which types of websites are better?

The study found that academic and institutional sources generally performed better than patient-generated content or AI-based materials. However, even these higher-quality sources still often fell short of standard requirements for clarity and usability.

Study Details

Study typeMeta analysis
EvidenceLevel 1
PublishedJul 2026
View Original Abstract ↓
BACKGROUND: Online patient education materials (OPEMs) are increasingly relied upon by patients seeking information on breast reconstruction. However, the readability, quality, and cultural inclusivity of these resources remain unclear. METHODS: Following PRISMA guidelines, a systematic review and meta-analysis of OPEMs related to breast reconstruction was conducted across PubMed, Embase, and Scopus through April 2025. Eligible studies evaluated websites, videos, or AI-generated materials for readability [Flesch-Kincaid Grade Level (FKGL), Flesch Reading Ease Scores (FRES), and SMOG], quality (DISCERN), or usability [Patient Education Materials Assessment Tool (PEMAT)]. Data were pooled using random-effects models. Studies lacking quantitative data were synthesized thematically. RESULTS: Twenty studies encompassing 1634 OPEMs (1038 websites and 596 videos) were included. Meta-analyses revealed that most materials required a high reading level: FKGL mean=12.68, SMOG=12.29, and FRES=42.39, all indicating difficult-to-college-level text. DISCERN quality scores averaged 2.72/5, with wide variability across sources. PEMAT scores indicated suboptimal usability: understandability=61.9% and actionability=21.9%. Thematic analysis highlighted deficiencies in risk disclosure, citation use, language accessibility, and racial/ethnic representation. Non-English materials and social media content were especially limited in cultural sensitivity and depth. CONCLUSIONS: OPEMs in breast reconstruction are often inaccessible, incomplete, and insufficiently actionable. Content from academic or institutional sources generally outperforms patient-generated and AI-based materials but still falls short of recommended standards. There is an urgent need for coordinated evidence-based guidelines to improve digital patient education in reconstructive surgery.
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