N/A N=73 Adolescents and Young Adults (AYAs) With Advanced Cancer
Adolescent and Young Adult Cancer Patient
Primary: Treatment Acceptability Questionnaire — 6.02 score on a scale
Clinical Trial Search
Completed trials with posted results — search by concept, filter by the parameters that matter at the bedside.
N/A N=26 Improving Care Coordination for Adolescents and Young Adults With Cancer
Cancer
Primary: Feasibility of Intervention Measure (FIM) AYA — 4.52 units on a scale
N/A N=61 Symptom Management for YA Cancer Survivors
Cancer · Young Adult · Pain
Primary: Intervention Satisfaction: Satisfaction With Therapy and Therapist Scale-Revised (STTS-R) — 26.71; 27.33; 28.86; 27.75 scores on a scale — p=0.519
N/A N=60 Feasibility of a Self-Management + Peer Mentoring Intervention for Adolescent and Young Adult Childhood Cancer Survivors
Childhood Cancer Survivors
Primary: Feasibility Measure: Enrollment (Young Adult Survivors) - Number of Eligible Patients Consented and Completing Baseline — 50; 29 Participants
N/A N=102 Videos for Advance Care Planning in Young Adults
Advanced Cancer
Primary: Increased Concordance Rate in Stated Goals of Care (Life-prolonging Medical Care, Selective Medical Care, or Comfort-focused Care) — 20; 15; 5; 10 Participants
N/A N=89 Education Tools to Support Pediatric Survivor Care
Cancer · Pediatric Cancer
Primary: Survivor Care Knowledge Scale — 10.6; 11.2 score on a scale
N/A N=86 Improving Health Insurance Experiences for Adolescent and Young Adult Cancer Patients
Adolescent · Young Adult · Cancer
Primary: Feasibility Measurement — 39; 25 Participants
N/A N=155 mHealth for Young Adult Cancer Survivors
Survivorship · Cancer · Psychological Well-Being
Primary: Retention — 74; 72 Participants
N/A N=31 Peer Mentoring in Promoting Follow-up Care Self-Management in Younger Childhood Cancer Survivors
Cancer Survivor
Primary: Feasibility as Measured by Study Enrollment Rates, Retention Rates, Adherence to the Intervention, and Reasons for Study Drop Out. — 20; 11; 8; 0 Participants
N/A N=24 A Pilot Feasibility Trial of a Tailored Intervention to Improve Adherence in Adolescents and Young Adults With Cancer
Cancer · Adherence, Medication
Primary: Enrollment Rate — 70 Participants
N/A N=97 Decision Aid for Education and Support About Cancer Treatment
Cancer · Childhood Cancer
Primary: Acceptability of Decision Aid — 4.10; 4.06; 4.01; 4.13 Average Score on a Scale
N/A N=195 The PRISM Intervention: a Multi-site Randomized Controlled Trial for Adolescents and Young Adults With Advanced Cancer
Cancer · Quality of Life · Anxiety
Primary: Pediatric Quality of Life Cancer Module — 66.89; 68.41 score on a scale
N/A N=344 Bright IDEAS - Young Adults Problem-Solving Skills Training
Cancer Patients · Young Adult · Supportive Care
Primary: Change in Symptoms of Depression, as Measured by the Patient-Reported Outcomes Measurement Information System (PROMIS) Depression Short-Form (v1.0 8a) — -2.92; 0.31…
N/A N=72 Physical Activity and Healthy Eating Among Young Adult Cancer Survivors
Physical Activity · Neoplasms · Cancer
Primary: Accrual Rate — 12 Participants per month
N/A N=27 Feasibility of Expressive Writing for Body Image Distress and Anxiety Among Adolescent and Young Adult Cancer Survivors
Adolescent Cancer · Young Adult Cancer · Body Image
Primary: Feasibility of In-home Body Image (BI) -Focused Expressive Writing (EW) Intervention for Post-treatment Adolescent and Young Adult (AYA) Cancer Survivors With BI…
N/A N=43 Internet-Delivered Positive Affect Program in Managing Emotion in Young Adult Cancer Survivors
Cancer Survivor
Primary: Acceptability - Mean Value — 8.81 score on a scale
N/A N=32 Smart-phone Application to Promote Medication Adherence in Adolescents and Young Adults (AYA) With Cancer
Neoplasms
Primary: Feasibility and Acceptability of Using a Smart-phone Medication Reminder Application to Promote Adherence to Oral Medications by AYA With Cancer. — 21; 13 Participants
N/A N=49 Mobile Health Fitness Program for Adolescent and Young Adult Childhood Cancer Survivors
Survivorship · Fatigue
Primary: Feasibility of the Technology-enhanced Fitness Program — 25; 24 Participants
N/A N=15 Self-Management of Cancer-Related Fatigue by Adolescents
Neoplasms · Fatigue
Primary: Change From Baseline in Fatigue Scale-Adolescent (FS-A) Score Categorized According to 1-5 Rating Scale of Resource Use and Resource Helpfulness. — -3; -3; -4; -4 units…
N/A N=126 Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer
Cancer
Primary: Statement of Treatment Preferences (SOTP) a Tool to Measure Goals of Care. — 10; 22; 38; 19 Dyads — p=<0.05
N/A N=10 Feasibility and Preliminary Efficacy of a Mindfulness-based Intervention for Children and Young Adults With High Grade or High-Risk Cancer and Their Caregivers
Glioblastomas · Sarcoma · Astrocytoma
Primary: Percentage of Eligible Dyads (Parent-child) Who Enroll During a Two-year Period — 100; 100 percentage of dyads
N/A N=347 Communicating Health Information and Improving Coordination With Primary Care
Hypertension · Dyslipidemias · Diabetes
Primary: Undertreatment of Hypertension (>=140/90 mmHg), Dyslipidemia (LDL >=160 mg/dL or Triglyceride >=150 mg/dL), and/or Glucose Intolerance (if Prediabetes, Hemoglobin A1c…
N/A N=98 A Web-Based Physical Activity Intervention in Adolescent Survivors of Childhood Cancer
Cancer
Primary: Differences in Change in Daily Average of Moderate and Vigorous Physical Activity (MVPA) Levels Between Groups — -2.58; -2.12; -7.78 minutes — p=0.90
N/A N=26 Characterizing and Addressing Financial Toxicity in AYAs With Cancer
Cancer in Adolescence
Primary: Number of Participants Who Completed the Intervention — 21 Participants
N/A N=143 The PRISM Intervention for Adolescents and Young Adults Receiving Hematopoietic Cell Transplantation
Cancer · Bone Marrow Neoplasms · Anxiety
Primary: Hospital Anxiety & Depression Scale (HADS) Score - Depression Sub-score — 4.55; 4.03 score on a scale
N/A N=52 Improving Health Communication During the Transition From Pediatric to Adult Diabetes Care
Type 1 Diabetes Mellitus
Primary: Hemoglobin A1c — 7.988; 8.025 A1c percentage
Phase 2 N=120 Augmented Berlin-Frankfurt-Munster (BFM) Therapy for Adolescent/Young Adults With Acute Lymphoblastic Leukemia or Acute Lymphoblastic Lymphoma
Lymphoblastic Leukemia · Lymphoblastic Lymphoma
Primary: 3-Year Event-Free Survival (EFS) — 68 Participants
N/A N=40 Evaluating an mHealth Intervention for Reducing Alcohol Use Among Adolescent and Young Adult Cancer Survivors
Cancer · Alcohol Use
Primary: Percent of Eligible Participants Enrolling in the Study — 66.7 percentage of eligible who enrolled
N/A N=14 Mindfulness-based Intervention for Teenagers With Cancer
Pediatric Cancer
Primary: Changes in Mood From Baseline to Post-intervention and 6 Months Post-intervention — 18.9; 17.8; 15.9; 12.8 units on a scale — p=0.613
N/A N=56 Sleep Treatment Education Program for Young Adult Cancer Survivors (STEP-YA)
Insomnia · Insomnia Due to Medical Condition · Cancer
Primary: Insomnia Severity Change at 8 Weeks — 7.25; 5.67 Units on a scale